ADNP KIDS RESEARCH FOUNDATION
ADNPkids is dedicated to helping families, care providers, researchers and medical professionals understand ADNP Syndrome aka Helsmoortel Van Der Aa Syndrome The mission of The ADNP Kids Research Foundation is to enhance the lives of people affected by ADNP Syndrome by providing family support, raising awareness, and supporting research and education. The MISSION of The ADNP Kids Research Foundation (ADNP-KRF) is to advance the awareness and accelerate the treatment of ADNP Syndrome / Helsmoortel – Van Der Aa Syndrome (ADNP) by supporting research for treatments and drug development, promoting individualized specialty care and protocol, increasing awareness and scientific understanding, supporting families and providing information to help all individuals with ADNP realize their full potential and have a better quality of life.
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Brush Prairie
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