ICO
272423774
Web
pheopara.org
Address
Bethesda,
Pheochromocytoma & Paraganglioma - The Pheo Para Alliance Our Team Speakers Bureau Pheochromocytoma Paraganglioma Peer Support Newly Diagnosed Care Kits Clinical Care Guidelines Center of Excellence Program PatientFocused Research International Symposium on Pheo Peer Support 1 on 1 and monthly peer support meetings Center of Excellence Program Find an Experienced Medical Team learn more Pheo Para Educational Video Library help others Pheo Para Alliance NEWS EVENTS keeping you up to date 2025 Rare Disease Day Posted on 25th February 2025 Nominate a Phriend for a 2025 Volunteer Award. Posted on 21st February 2025 2025 Volunteer Appreciation Week Posted on 21st February 2025 Education Webinar Series Finding and Working With a Medical Team Posted on 19th February 2025 International Pheo Para Education Conference Posted on 5th February 2025 Announcement. FDA Grants Priority Review to Mercks Application for WELIREGbelzutifan Posted on 28th January 2025 PPA Welcomes New Program Coordinator Posted on 24th January 2025 Monthly Peer Support Meeting Posted on 15th February 2025 6th Annual Awareness Week Kick Off Committee Meeting Posted on 15th January 2025 Tumores Neuroendocrinos Para Pacientes y Cuidadores Posted on 17th December 2024 December Newsletter Posted on 17th December 2024 PPA Releases Patient Guide to Metanephrines Test Posted on 16th December 2024 Education Webinar Series 5th Annual Fireside Chat Posted on 12th December 2024 Monthly Peer Support Meeting Posted on 9th January 2025 Monthly Peer Support Meeting Posted on 14th January 2025 Learn what is pheo para. Pheo recently diagnosed with pheochromocytoma.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Discussions
Odpovědí v diskuzi
1
What strategies can we implement to increase awareness and understanding of pheochromocytoma and paraganglioma among healthcare professionals and the general public?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can peer support initiatives be enhanced to better serve newly diagnosed patients within the Pheo Para community?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the amazing resources provided by PPA! The peer support meetings have truly made a difference in my journey. 💜🙏 #PheoPara #SupportCommunity
Brooklyn Simmons
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Excited to see the progress being made in pheo para research! Shoutout to all the volunteers working tirelessly to raise awareness and support for those affected. Keep up the great work! 🌟 #RareDiseaseDay #PheoParaAlliance
Brooklyn Simmons
Product Manager
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