Neurofibromatosis Midwest
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis in our region which includes Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri. NF Midwest C.A.R.E.S.! C.A.R.E.S. stands for Clinics, Awareness, Research, Education and Support. NF Midwest seeks to help those with NF in our region by improving Clinics and making them more accessible; raising Awareness; promoting and supporting Research; Educating those affected, the community and medical professionals; and providing much needed Support to the increasing amount of people diagnosed with NF1, NF2, and schwannomatosis.
Founded
1981
4900
Web
nfmidwest.org
Address
St. Charles
Home Neurofibromatosis Midwest Clinics Awareness Research Education Support Mom found NF Midwest she calls them our life ring and for good reason they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner.
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From Social media
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- Neurofibromatosis Midwest
- 2025-05-31
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- Neurofibromatosis Midwest
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Liked (72) Commented (3)Discussions
Odpovědí v diskuzi
1
1. What strategies can we implement to increase awareness about Neurofibromatosis within local communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we improve support networks for families newly diagnosed with NF to help them navigate the emotional and informational challenges?
View
Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 Thank you, NF Midwest, for being a beacon of hope for families navigating the challenges of neurofibromatosis! Your support and resources make such a difference in our lives. We are grateful! 💙 #NFMidwest #TogetherWeThrive
Brooklyn Simmons
Product Manager
💬 It’s heartwarming to hear how NF Midwest has created a community of support and understanding! Knowing we're not alone in this journey is everything. Keep up the amazing work! 🌈 #Support #NFCommunity
Brooklyn Simmons
Product Manager
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