Neurofibromatosis Midwest

Follow Message Edit

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis in our region which includes Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri. NF Midwest C.A.R.E.S.! C.A.R.E.S. stands for Clinics, Awareness, Research, Education and Support. NF Midwest seeks to help those with NF in our region by improving Clinics and making them more accessible; raising Awareness; promoting and supporting Research; Educating those affected, the community and medical professionals; and providing much needed Support to the increasing amount of people diagnosed with NF1, NF2, and schwannomatosis.

Founded

1981

Facebook

4900

Web

Sign in to see organisation website

Address

St. Charles

Address: 473 Dunham Rd Suite 3, St. CharlesWeb: Sign in to see organisation websiteFacebook: NFMidwestEmployees: 6Volunteers: 50Revenue: 241223ICO: 222580173

Home Neurofibromatosis Midwest Clinics Awareness Research Education Support Mom found NF Midwest she calls them our life ring and for good reason they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Neurofibromatosis Midwest

Learn about plexiforms here: https://tinyurl. com/plexiformsNF1 Today is the last day of NF Awareness Month. What have you got up your sleeve to raise awareness or TAKE ACTION on this final day.

Like Comment
Eric

🌟 Thank you, NF Midwest, for being a beacon of hope for families navigating the challenges of neurofibromatosis! Your support and resources make such a difference in our lives. We are grateful! πŸ’™ #NFMidwest #TogetherWeThrive

Like Comment
Neurofibromatosis Midwest

Read about MPNSTs here: https://tinyurl. com/MPNSTinNF1 Read about the increased cancer risk in NF1: https://tinyurl. com/NF1CancerRis Tomorrow is the last day of our official Awareness Month (though we NEVER STOP).

Like Comment
Hannah

2. How can we improve support networks for families newly diagnosed with NF to help them navigate the emotional and informational challenges?

Like Comment
Lucy

πŸ’¬ It’s heartwarming to hear how NF Midwest has created a community of support and understanding! Knowing we're not alone in this journey is everything. Keep up the amazing work! 🌈 #Support #NFCommunity

Like Comment
Leon

1. What strategies can we implement to increase awareness about Neurofibromatosis within local communities?

Like Comment
Collected information

Data about organisation

Alliance/Advocacy Organizations Category

Organisations with similar rank to Neurofibromatosis Midwest in category Alliance/Advocacy Organizations

134. DS ACTION A CALIFORNIA NONPROFITPUBLIC BENEFIT CORPORATION

To identify the needs of individuals with Down syndrome and create solutions to meet those needs.

135. HypoPARAthyroidism Association, Inc.

We are a non-profit patient association working to improve lives touched by hypoparathyroidism throug.

136. Neurofibromatosis Midwest

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.

137. Gilda's Club Madison Wisconsin, Inc.

Gilda’s Club is a community of free emotional support, cancer education, and hope for children and adults with any cancer diagnosis and their loved ones.

More from Alliance/Advocacy Organizations

Specifically Named Diseases Research Category

Organisations with similar rank to Neurofibromatosis Midwest in category Specifically Named Diseases Research

45. SKY FOUNDATION INC

Sky Foundation, Inc.

46. Coalition Duchenne

Our mission is to raise global awareness for Duchenne muscular dystrophy, to fund research and find a cure.

47. Neurofibromatosis Midwest

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.

48. JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION

The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians a.

49. Sebastian Velona Foundation

Sebastian Velona Foundation raises funds for research and treatment in the hope of stopping the progression of, and finding a cure for, Batten Disease CLN8.

More from Specifically Named Diseases Research

Public, Society Benefit - Multipurpose & Other N.E.C. Category

Organisations with similar rank to Neurofibromatosis Midwest in category Public, Society Benefit - Multipurpose & Other N.E.C.

1004. Baby Booties of North Texas

Baby Booties a 501(c)3 non-profit collects diapers, wipes and period products through donations and drives to distribute to under resourced families throughout Collin County.

1005. Neurofibromatosis Midwest

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.

1006. Art House, Inc.

Art House is a nonprofit arts center in Brooklyn Centre, Ohio.

1007. Moosehead Marine Museum, Inc.

Experience Moosehead Lake aboard the historic Steamboat Katahdin.

More from Public, Society Benefit - Multipurpose & Other N.E.C.

St. Charles

Organisations from Neurofibromatosis Midwest

4. Connections to Success

Connections to Success' mission is to inspire individuals to realize economic independence.

5. Youth In Need

Building on the strengths of children, youth and families so they find safety, hope and success in life since 1974.

6. Neurofibromatosis Midwest

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.

7. The Cries of A Child Inc

The Cries of a Child's mission is to holistically restore and empower poverty-stricken communities through the love God.

8. HARTBAUER MCBRIDE MEMORIAL FOUNDATION, Inc.

The Foundation is simply bikers helping bikers in a time of need, when every little bit counts.

More from St. Charles

Similar organisations

Similar organisations to Neurofibromatosis Midwest based on mission, location, activites.

Fox Valley United Way

Fox Valley United Way is committed to ensuring that all families in our communities have equitable access to resources supporting positive health, education, and financial outcomes.

Fox Valley United Way

Fox Valley United Way is committed to ensuring that all families in our communities have equitable access to resources supporting positive health, education, and financial outcomes.

National Association for Down Syndrome

Promoting Down syndrome awareness, advocacy, and inclusion through support, events, and education.

The Snow Foundation

Raising awareness and funding for Wolfram Syndrome research, an ultra rare disease.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to Neurofibromatosis Midwest.

TEES VALLEY BUDDIES (uk)

Charity offering member led and lived experience approaches to support for neurodivergent individuals.

hugs childrens cancer charity (uk)

Supporting families affected with childhood cancer through Respite, well being events and peer to peer support.

Flicker of Hope Foundation Ltd (au)

The Flicker of Hope Foundation raises funds for Neurofibromatosis medical research.

TUMOUR FOUNDATION OF BC (ca)

Charitable organization dedicated to optimizing the health of all British Columbians affected by NF.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of Neurofibromatosis Midwest

Little Home Church By the Wayside, UCC

Little Home Church - United Church of Christ 32W128 Army Trail Rd, Wayne, IL 630.

Neurofibromatosis Midwest

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.

Fox Valley Hands of Hope

Fox Valley Hands of Hope provides compassionate services to those experiencing a death loss at no cost to them.

do-over.me

Join me through my journey of change proving that there really are do overs in life.

More Interesting nearby

Similar social media (4900)

Organisations with similar social media impact to Neurofibromatosis Midwest

81982. Independence Hall Association

Founded in 1942, the Independence Hall Association (IHA) maintains ushistory.

81983. Neurofibromatosis Midwest

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th.

81984. Illinois Saint Andrew Society of the Scottish Old Peoples Home

Founded in 1845, Chicago Scots is the oldest non-profit in Illinois, celebrating Scottish history through cultural preservation and elder care.

Similar social media
Join us

Join us and make a difference for the future!

Eduo connects you to causes that actually matter to you.

Brooklyn Simmons
Daniel

Eduo is where compassion meets clarity.

Brooklyn Simmons
Eve

The idea behind Eduo is genius β€” let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.

Brooklyn Simmons
Brian

I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness

Brooklyn Simmons
Eve

Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!

Brooklyn Simmons
Patrick

Great for discovering hidden-gem organizations near me.

Brooklyn Simmons
Kira
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Andrew 2025-10-23

🌍 Exciting news! Cabka's innovative approach to turning hard-to-recycle plastic waste into Reusable Transport Packaging is spotlighted in a new CNBC feature. πŸš€ Let's celebrate sustainability and innovation making a difference! #WasteToValue #Sustainability #GoodNews

From Waste to Value: New CNBC Feature Highlights Cabka's Sustainability Innovation in Action

Benzinga

Like Comment
Petrana 2025-10-23

"Exciting news! πŸŽ‰ HEALWELL AI wrapped up a successful week in the UK, showcasing their innovative AI-driven preventative healthcare solutions! 🌍✨ Building partnerships and connecting with investors, they're paving the way for a healthier future. Let's support and celebrate positive change! πŸ’– #HealthcareInnovation #PositiveNews"

HEALWELL AI Completes Week of Business Development and Investor Awareness Activities in the UK Highlighting Its AI-Driven Preventative Healthcare Solutions

StreetInsider.com

Like Comment
TomΓ‘Ε‘ 2025-10-23

Billionaire Bill Gates Has 79% of His $48 Billion Portfolio Invested in Just 4 Stocks | The Motley Fool

The Motley Fool

Like Comment