Littlest Tumor Foundation

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Our mission is to increase understanding of Neurofibromatosis (NF), empower affected families, and advance research of preventative therapies. OUR MISSION Increase understanding of NF, empower affected families and advance research of preventative therapies. INCREASE UNDERSTANDING OF NEUROFIBROMATOSIS (NF), EMPOWER AFFECTED FAMILIES, ADVANCE RESEARCH OF PREVENTIATIVE THERAPIES.

Littlest Tumor Foundation

The Littlest Tumor Foundation is a 501(c)(3) nonprofit organization dedicated to improving the lives of individuals affected by Neurofibromatosis (NF), a group of genetic disorders that cause tumors to grow on nerves throughout the body. The foundation focuses on advancing research for NF, promoting awareness, and providing support to affected families.

Mission

The mission of the Littlest Tumor Foundation is to enhance understanding of NF, empower families dealing with the condition, and advance research into preventative therapies. They strive to create a better future for those affected by NF through their advocacy, education, and community support initiatives.

Programs and Activities
  • NF Family Wellness Retreat: This annual event combines knowledge-building, compassion, and adventure to support families dealing with NF. It aims to promote wellness and empower individuals with NF.
  • NF Young Adult Leadership Program: This program is designed to empower young adults with NF, helping them become leaders in their community and advocates for NF awareness and research.
  • NF Collective: This initiative connects the NF community through various events and activities, fostering a supportive network for those affected.
  • Advocacy: The foundation advocates for federally funded research through collaborations with Congress and other organizations, promoting awareness about NF and supporting research efforts.
Impact and Finances

The Littlest Tumor Foundation relies heavily on contributions to fund its activities. In recent years, the organization has managed to grow its assets and support more community programs. Through grassroots efforts, they have successfully promoted bipartisan support for NF research funding.

Collaboration and Awareness

The foundation collaborates with various stakeholders, including Congress, non-profit organizations, and businesses, to increase awareness about NF and to push for more treatments. They use social media, congressional briefings, and public events to educate people about the severity and complexity of NF.

Overall, the Littlest Tumor Foundation plays a significant role in the NF community by providing support, promoting awareness, and advancing NF research in the United States.

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ICO

270917237

Facebook

3400

X (Twitter)

1375

Address

Appleton

Address: PO Box 7051, AppletonWeb: Sign in to see organisation websiteFacebook: LittlestTumorX (Twitter): LittlestTumorRevenue: 126661ICO: 270917237

A Neurofibromatosis Foundation | Littlest Tumor Foundation

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From Social media

News about from their social media (Facebook and X).

Margot

What are some effective strategies for raising awareness about Neurofibromatosis in local communities?

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Littlest Tumor Foundation

Such good fortune to collaborate with all on this amazing panel that kicked off the NF Summit. Keynote Panel: Stay Active, Stay Vocal, Stay United- How the NF Community Drives progress Together. @pennysflight @curenfwithjack.

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Littlest Tumor Foundation

We were honored to speak on a panel about the nfcollective. org at the NF Summit. Andrea Malta spoke about transitioning from pediatric care to adult care.

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Peter

How can we better support families affected by NF in accessing existing resources and therapies?

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Andrew

It's heartbreaking to know that 3.9 million people live with NF, but together we can bring hope and empower those families. Let's unite our voices for change and advocate for the research that can lead to better treatments. ๐Ÿ’ช #CureNF

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Mark

So inspired by the amazing work the Littlest Tumor Foundation is doing! ๐Ÿ’– Together, we can raise awareness and support families affected by NF. Let's keep pushing for more research and a brighter future for everyone! ๐ŸŒŸ

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