Littlest Tumor Foundation

The Littlest Tumor Foundation is a 501(c)(3) nonprofit organization dedicated to improving the lives of individuals affected by Neurofibromatosis (NF), a group of genetic disorders that cause tumors to grow on nerves throughout the body. The foundation focuses on advancing research for NF, promoting awareness, and providing support to affected families.

Mission

The mission of the Littlest Tumor Foundation is to enhance understanding of NF, empower families dealing with the condition, and advance research into preventative therapies. They strive to create a better future for those affected by NF through their advocacy, education, and community support initiatives.

Programs and Activities

• NF Family Wellness Retreat: This annual event combines knowledge-building, compassion, and adventure to support families dealing with NF. It aims to promote wellness and empower individuals with NF.
• NF Young Adult Leadership Program: This program is designed to empower young adults with NF, helping them become leaders in their community and advocates for NF awareness and research.
• NF Collective: This initiative connects the NF community through various events and activities, fostering a supportive network for those affected.
• Advocacy: The foundation advocates for federally funded research through collaborations with Congress and other organizations, promoting awareness about NF and supporting research efforts.

Impact and Finances

The Littlest Tumor Foundation relies heavily on contributions to fund its activities. In recent years, the organization has managed to grow its assets and support more community programs. Through grassroots efforts, they have successfully promoted bipartisan support for NF research funding.

Collaboration and Awareness

The foundation collaborates with various stakeholders, including Congress, non-profit organizations, and businesses, to increase awareness about NF and to push for more treatments. They use social media, congressional briefings, and public events to educate people about the severity and complexity of NF.

Overall, the Littlest Tumor Foundation plays a significant role in the NF community by providing support, promoting awareness, and advancing NF research in the United States.