TEXAS PRADER-WILLI ASSOCIATION

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Our mission is to enhance the quality of life for all those affected by Prader-Willi Syndrome through education, support and advocacy. Our mission is to enhance the quality of life for all those affected by Prader-Willi Syndrome through education, support and advocacy.

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270901783

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Richmond

Address: 503 FM 359 Suite 130, Box 130, RichmondWeb: Sign in to see organisation websiteX (Twitter): PraderAssocRevenue: 207874ICO: 270901783

Texas Prader Willi Association Welcome to Texas PraderWilli Association The Texas PraderWilli Association TXPWA was founded in 2009. Small parent groups from around Texas got together to form an association to address the myriad needs of families coping with a child with Prader Willi Syndrome PWS. The original board members were successful in obtaining a 501c3 nonprofit charitable organization status. This monumental accomplishment enabled us to achieve much of our mission.

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Barbara

How can we improve the support networks for families dealing with Prader-Willi Syndrome to ensure they have access to essential resources and information?

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Christine

πŸ’™ It's heartwarming to see communities come together to support families affected by Prader-Willi Syndrome. Let's spread awareness and make a difference together! #TXPWA #SupportPWS

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Valerie

What strategies can we implement to raise greater awareness about Prader-Willi Syndrome in our communities and schools?

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Catherine

🌟 Grateful for the Texas Prader-Willi Association and all the amazing work they're doing to enhance the lives of those impacted by PWS. Count me in for supporting this important cause! #TogetherForPWS #AdvocacyMatters

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358. CTNNB1 Gene Therapy Foundation

We have started the CTNNB1 Gene Therapy Foundation in Texas to support gene therapy trials for children with CTNNB1 syndrome.

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