Joshuas Future of Promises Inc
Joshua's FOP
Joshua’s Future Of Promises is a non-profit organization set up by Joshua Scoble’s family! TO PROVIDE FUNDING FOR RESEARCH AND MEDICAL EXPENSES FOR THOSE AFFLICTED WITH FIBRODYSPLASIA OSSIFICANS PROGRESSIVA.
271601452
EIN
Emmaus, PA 18049 United States
Address
joshuasfop.com
Web
JoshuasFutureOfPromises
Facebook (1900)
Podobné organizace
Podobné organizace global
FOP FRIENDS |
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MIND BODY EDS |
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FIBROSUPPORT-WALES |
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CANADIAN FOP NETWORK |
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The FSHD Canada Foundation |
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About the organization
- H50 -
Joshuas Story Hi my name is Joshua Scoble and I am eighteen years old. I was diagnosed with Fibrodysplasia Ossificans Progressiva FOP when I was only three months old. FOP is a very rare inherited connective tissue disorder. Specifically this disorder causes my bodys skeletal muscles and soft connective tissue to undergo a transformation into bone progressively locking my joints in place and making movement difficult or impossible.
Nerve, Muscle, and Bone Research
23 Vacancy
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