U R Our Hope

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Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage. www.urourhope.org U.R. Our Hope is a registered 501 (c)(3) non-profit organization that assists individuals and their families on their journey to diagnosis,or helps them navigate the healthcare system with a rare diagnosis. Our mission is to serve individuals with undiagnosed and rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment, and healing.

ICO

270654046

Facebook

1800

X (Twitter)

504

Address

AUSTIN

Address: PO BOX 50152, AUSTINWeb: Sign in to see organisation websiteFacebook: urourhopeX (Twitter): urourhopeICO: 270654046

U.R. Our Hope – Assisting the Undiagnosed and Rare at any age and any stage Home MONTHLY MEETINGS UPCOMING EVENTS ABOUT US RARE DISEASES AMERICANS AFFECTED AVG COST GENETIC TESTING YEARS TO DIAGNOSIS WHO WE ARE U. R. Our Hope is a registered 501 c3 nonprofit organization that assists individuals and their families on their journey to diagnosisor helps them navigate the healthcare system with a rare diagnosis. Our mission is to serve individuals with undiagnosed and rare disorders through education advocacy and support in order to bring hope through knowledge empowerment and healing.

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News about from their social media (Facebook and X).

Yvette

How can we better advocate for policy changes that improve access to genetic testing and resources for families dealing with rare diseases?

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Christina

So grateful for the work you do! Every family deserves access to the information and resources they need. Let’s spread the word and raise awareness for those with rare disorders! 🌟 #HopeThroughKnowledge

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Lena

What strategies can NGOs implement to raise awareness about the challenges faced by individuals with undiagnosed and rare disorders?

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Luke

What an incredible mission! Thank you for supporting those in need of answers and hope. Together, we can make a difference! 💙 #UROurHope

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