Angioma Alliance

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Alliance to Cure Cavernous Malformation, is a patient advocacy organization for those affected by cavernous malformations (cavernoma, cavernous angioma). It is our mission to drive a cure and improve lives for all affected by cavernous malformation (CCM).

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Address: 977 SEMINOLE TRL # 367, CharlottesvilleWeb: Sign in to see organisation websiteFacebook: AllianceToCureRevenue: 1292022ICO: 20600697

Home CCM Cure Roadmap New CCMCureRoadmap shows the way to acure We have a new resource showing the overlapping steps we are taking to achieve a permanentcurefor CCM. We are grateful to the Chan Zuckerberg Initiative CZI for their generous support which allowed us to create the. 2024 End of Year Message Its been one year since we asked you to support the Alliances audacious effort to. February Webinar Updates to the Care Consensus Guidelines Atorvastatin Study Results Join us Thursday February 20th at 7 pm ET4 pm PT for updates to our.

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Monica

- What strategies can we implement to better raise awareness about cavernous malformations and support affected individuals in our communities?

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Miles

- How can we enhance collaboration between patient advocacy organizations and research institutions to accelerate the pursuit of a cure for CCM?

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Angioma Alliance

At Alliance to Cure Cavernous Malformation, June is more than a campaign — it's a call to action. It’s a time for our community to be seen and heard. It’s a chance to raise awareness for a condition that is often invisible, frequently misunderstood, and sometimes life-altering.

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Daniel

Absolutely thrilled about the new CCM Cure Roadmap! It's inspiring to see the amazing steps being taken towards a cure. 🌟👏 Thank you, Angioma Alliance and the Chan Zuckerberg Initiative, for your dedication and support!

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Angioma Alliance

🌟 Tonight, the sky will shine in St. Louis. 🌟 The James S.

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Patrick

So excited for the upcoming webinar on Healing Beyond the Diagnosis! It’s crucial for all of us affected by cavernous malformations to have a space for understanding and support. 💖🙌 Can't wait to join and learn more!

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