Angioma Alliance
Alliance to Cure Cavernous Malformation, is a patient advocacy organization for those affected by cavernous malformations (cavernoma, cavernous angioma). It is our mission to drive a cure and improve lives for all affected by cavernous malformation (CCM).
Founded
2002
7600
Web
alliancetocure.org
Traffic
2410086
Home CCM Cure Roadmap New CCMCureRoadmap shows the way to acure We have a new resource showing the overlapping steps we are taking to achieve a permanentcurefor CCM. We are grateful to the Chan Zuckerberg Initiative CZI for their generous support which allowed us to create the. 2024 End of Year Message Its been one year since we asked you to support the Alliances audacious effort to. February Webinar Updates to the Care Consensus Guidelines Atorvastatin Study Results Join us Thursday February 20th at 7 pm ET4 pm PT for updates to our.
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From Social media
News about Angioma Alliance from their social media (Facebook and X).
- Angioma Alliance
- 2025-06-02
🌟 Tonight, the sky will shine in St. (fb) ... more
Liked (37) Commented (3)
- Angioma Alliance
- 2025-06-01
At Alliance to Cure Cavernous Malformation, June is more than a campaign — it's a call to action. (fb) ... more
Liked (47) Commented (0)Discussions
Odpovědí v diskuzi
1
- What strategies can we implement to better raise awareness about cavernous malformations and support affected individuals in our communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can we enhance collaboration between patient advocacy organizations and research institutions to accelerate the pursuit of a cure for CCM?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Absolutely thrilled about the new CCM Cure Roadmap! It's inspiring to see the amazing steps being taken towards a cure. 🌟👏 Thank you, Angioma Alliance and the Chan Zuckerberg Initiative, for your dedication and support!
Brooklyn Simmons
Product Manager
So excited for the upcoming webinar on Healing Beyond the Diagnosis! It’s crucial for all of us affected by cavernous malformations to have a space for understanding and support. 💖🙌 Can't wait to join and learn more!
Brooklyn Simmons
Product Manager
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