United Pompe Foundation

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SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE

Founded

2002

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Address

Fresno

Address: 5100 N 6th St, FresnoWeb: Sign in to see organisation websiteVolunteers: 6Revenue: 25795ICO: 43685533

Home - United Pompe Foundation United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance. A Primer for Family Medicine and Primary Care Focusing on Pompe Disease by David Hamlin Sep 26 2019 Recognizing Pompe disease a progressive debilitating and often fatal neuromuscular disease caused by a genetic deficiency or dysfunction of the lysosomal enzyme acid alphaglucosidase GAA can be challenging as its signs and symptoms are like those of other. POMPE Survey by David Hamlin Mar 10 2019 A biotech company that conducts research and develops treatments for people living with rare diseases such as Pompe disease wants your help. They are recruiting Pompe patients and caregivers to take a short online survey about your knowledge and understanding of.

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John

2. How can we improve awareness and education about Pompe disease among healthcare providers to ensure timely diagnosis and support for patients?

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Eva

💙 Thank you, United Pompe Foundation, for your relentless support and dedication to those battling Pompe disease! Every little bit helps, and together we can make a difference for families in need. #PompeWarriors

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Mark

🌟 Grateful for organizations like the United Pompe Foundation that step up for patients and their families during such challenging times. Let’s stand together and support this important cause! 💪 #SupportPompeDisease

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Andrea

1. What innovative fundraising strategies can the United Pompe Foundation implement to better support families affected by Pompe disease?

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Collected information

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Fresno

Organisations from United Pompe Foundation

1. ST PAULS FRESNO UNITED METHODIST CHURCH

The United Methodist Church is a worldwide connection of close to 10 million members in over 100 countries including Africa, Asia, Europe and the United States.

2. Church of Scientology Mission of Fresno

The official page of the Church of Scientology.

3. American Pistachio Growers

Increasing awareness about the nutritional benefits of pistachios #PistachioPower.

4. The Agricultural Foundation of

Official Facebook page of California State University, Fresno - "Fresno State.

5. CALIFORNIA STATE UNIVERSITY FRESNO

Official Facebook page of California State University, Fresno - "Fresno State.

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