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United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance. A Primer for Family Medicine and Primary Care Focusing on Pompe Disease by David Hamlin Sep 26 2019 Recognizing Pompe disease a progressive debilitating and often fatal neuromuscular disease caused by a genetic deficiency or dysfunction of the lysosomal enzyme acid alphaglucosidase GAA can be challenging as its signs and symptoms are like those of other. POMPE Survey by David Hamlin Mar 10 2019 A biotech company that conducts research and develops treatments for people living with rare diseases such as Pompe disease wants your help. They are recruiting Pompe patients and caregivers to take a short online survey about your knowledge and understanding of.