United Pompe Foundation
SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE
Founded
2002
Web
unitedpompe.com
Address
Fresno
Home - United Pompe Foundation United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance. A Primer for Family Medicine and Primary Care Focusing on Pompe Disease by David Hamlin Sep 26 2019 Recognizing Pompe disease a progressive debilitating and often fatal neuromuscular disease caused by a genetic deficiency or dysfunction of the lysosomal enzyme acid alphaglucosidase GAA can be challenging as its signs and symptoms are like those of other. POMPE Survey by David Hamlin Mar 10 2019 A biotech company that conducts research and develops treatments for people living with rare diseases such as Pompe disease wants your help. They are recruiting Pompe patients and caregivers to take a short online survey about your knowledge and understanding of.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Discussions
Odpovědí v diskuzi
1
1. What innovative fundraising strategies can the United Pompe Foundation implement to better support families affected by Pompe disease?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we improve awareness and education about Pompe disease among healthcare providers to ensure timely diagnosis and support for patients?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Thank you, United Pompe Foundation, for your relentless support and dedication to those battling Pompe disease! Every little bit helps, and together we can make a difference for families in need. #PompeWarriors
Brooklyn Simmons
Product Manager
🌟 Grateful for organizations like the United Pompe Foundation that step up for patients and their families during such challenging times. Let’s stand together and support this important cause! 💪 #SupportPompeDisease
Brooklyn Simmons
Product Manager
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