United Pompe Foundation
SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE
Founded
2002
Web
Sign in to see organisation website
Address
Fresno
Home - United Pompe Foundation United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance. A Primer for Family Medicine and Primary Care Focusing on Pompe Disease by David Hamlin Sep 26 2019 Recognizing Pompe disease a progressive debilitating and often fatal neuromuscular disease caused by a genetic deficiency or dysfunction of the lysosomal enzyme acid alphaglucosidase GAA can be challenging as its signs and symptoms are like those of other. POMPE Survey by David Hamlin Mar 10 2019 A biotech company that conducts research and develops treatments for people living with rare diseases such as Pompe disease wants your help. They are recruiting Pompe patients and caregivers to take a short online survey about your knowledge and understanding of.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Fresno
Organisations from United Pompe Foundation
1. ST PAULS FRESNO UNITED METHODIST CHURCH
The United Methodist Church is a worldwide connection of close to 10 million members in over 100 countries including Africa, Asia, Europe and the United States.
2. Church of Scientology Mission of Fresno
The official page of the Church of Scientology.
Increasing awareness about the nutritional benefits of pistachios #PistachioPower.
4. The Agricultural Foundation of
Official Facebook page of California State University, Fresno - "Fresno State.
5. CALIFORNIA STATE UNIVERSITY FRESNO
Official Facebook page of California State University, Fresno - "Fresno State.
Similar organisations
Similar organisations to United Pompe Foundation based on mission, location, activites.
Americans for Cures Foundation
We are advocates for stem cell research.
The Southern California Section of the American Association For
ADLM is dedicated to dedicated to achieving better health through laboratory medicine.
Alzheimers Coachella Valley's mission is to provide charitable services and support for persons with impaired cognition in the Coachella Valley.
Similar Organisations Worldwide
Organisations in the world similar to United Pompe Foundation.
The Pompe disease community has grown over many years to be a hugely supportive group of individuals, families, healthcare professionals and academics.
HUGHES SYNDROME FOUNDATION (uk)
APS Support UK is a national UK charity dedicated to anyone affected by antiphospholipid syndrome.
AHUS ALLIANCE GLOBAL ACTION (uk)
aHUS Alliance: Atypical HUS patient organizations from 30 nations.
Interesting nearby
Interesting organisations close by to residence of United Pompe Foundation
Health Care for All-California
Organizing for Single Payer health care in California https://healthcareforall.
FRESNO AMERICAN INDIAN HEALTH PROJECT
A Culturally Sensitive Health Access and Advocacy Program for American Indians in the City of Fresno, Ca.
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
🌍💚 Exciting news! Envision Energy has just been awarded the "AI for Sustainability Excellence" at the Reuters Global Sustainability Awards 2025! Their commitment to green technology is an inspiration for us all. Let’s support innovations that contribute to a sustainable future! #Sustainability #GreenTech
Envision Energy Honored with "AI for Sustainability Excellence" at Reuters Global Sustainability Awards 2025
Benzinga
Like Comment