EB Research Partnership

Follow Message Edit

EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB). 🦋 #HealEB 🔬 Find a cure EB Research Partnership funds research to find treatments and a cure for Epidermolysis Bullosa (EB)🦋 Founded in 2010 by a group of dedicated parents and close friends Jill and Eddie Vedder of Pearl Jam, EB Research Partnership (EBRP) is the largest global nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.

Founded

2010

Facebook

30000

X (Twitter)

3314

Traffic

1812273

Address: 244 Madison Ave 104, New YorkWeb: Sign in to see organisation websiteFacebook: EBResearchX (Twitter): EBResearchEmployees: 5Volunteers: 47Revenue: 7430625ICO: 272417202

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Collected information

Data about organisation

Specifically Named Diseases Research Category

Organisations with similar rank to EB Research Partnership in category Specifically Named Diseases Research

15. The Guthy-Jackson Research Foundation, Inc.

Through research & collaboration, we make medical breakthroughs for those with NMO.

16. National Scleroderma Foundation

A relentless force in finding a cure and improving the lives of people affected by #scleroderma.

17. EB Research Partnership

EB Research Partnership funds research to find treatments and a cure for Epidermolysis Bullosa (EB)🦋.

18. Ellyn Satter Institute Inc

TO HELP CHILDREN AND ADULTS BE COMPETENT AND JOYFUL WITH EATING.

More from Specifically Named Diseases Research

Fund Raising and/or Fund Distribution Category

Organisations with similar rank to EB Research Partnership in category Fund Raising and/or Fund Distribution

18. TRIPLE NEGATIVE BREAST CANCER FOUNDATION

A credible source for TNBC info, catalyst for patient advocacy, community for patients and families.

19. Friends of Mariam Inc

مؤسسة مريم هي المؤسسة الاولى والوحيدة العربية الرسمية لمكافحة السرطان التي تمثل المجتمع الفلسطيني بشكل رسمي.

20. EB Research Partnership

EB Research Partnership funds research to find treatments and a cure for Epidermolysis Bullosa (EB)🦋.

21. Foundation

Working to improve the quality of life for patients and their families through integrated clinical pr.

More from Fund Raising and/or Fund Distribution

Specifically Named Diseases Category

Organisations with similar rank to EB Research Partnership in category Specifically Named Diseases

32. National Scleroderma Foundation

A relentless force in finding a cure and improving the lives of people affected by #scleroderma.

33. Immune Deficiency Foundation

Improving the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.

34. EB Research Partnership

EB Research Partnership funds research to find treatments and a cure for Epidermolysis Bullosa (EB)🦋.

36. Society of Infectious Diseases Pharmacists

SIDP is an association of pharmacists and allied healthcare professionals dedicated to promoting the appropriate use of antimicrobial agents.

More from Specifically Named Diseases

New York

Organisations from EB Research Partnership

489. MTV STAYING ALIVE FOUNDATION

Storytelling to save lives.

490. EB Research Partnership

EB Research Partnership funds research to find treatments and a cure for Epidermolysis Bullosa (EB)🦋.

491. CREATING RESOURCES FOR EMPOWERMENT AND ACTION INC

CREA is a feminist human rights organisation.

492. Literary Classics of The United States, Inc.

Library of America is a nonprofit publisher of authoritative editions of great American writing.

More from New York

Interesting nearby

Interesting organisations close by to residence of EB Research Partnership

BRIDGE FUND OF NEW YORK INC

We prevent homelessness for vulnerable, working poor individuals and families who are threatened with.

ExpandED Schools

ExpandED is dedicated to ensuring that all young people in NYC have access to enriching afterschool.

EB Research Partnership

EB Research Partnership funds research to find treatments and a cure for Epidermolysis Bullosa (EB)🦋.

More Interesting nearby

Similar social media (33314)

Organisations with similar social media impact to EB Research Partnership

31930. MUSIC HALL CENTER FOR THE

Detroit’s Leading Not-For-Profit Cultural Center.

31931. Fondo Para La Paz

Somos una Organización de la Sociedad Civil que en 2024, cumple 30 años implementando el programa de Desarrollo Comunitario Sostenible a favor de las comunidades rurales en situación de pobreza, pobreza extrema y marginación en 🇲🇽.

31932. EB Research Partnership

EB Research Partnership funds research to find treatments and a cure for Epidermolysis Bullosa (EB)🦋.

31933. THE FORT LEWIS COLLEGE FOUNDATION

An Education to Live By.

31934. Hope USA

HOPE is dedicated to Poverty Alleviation throughout Pakistan.

Similar social media

Similar traffic

Organisations with similar web traffic to EB Research Partnership

57606. Bank of Sweden Tercentenary Foundation

Riksbankens Jubileumsfond är en fristående stiftelse vars ändamål är att främja humanistisk och samhällsvetenskaplig forskning.

57608. EB Research Partnership

EB Research Partnership funds research to find treatments and a cure for Epidermolysis Bullosa (EB)🦋.

57609. Criswell College

Visit us at: www.

Similar traffic
Join us

Join us and make a difference for the future!

Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.

Brooklyn Simmons
Kira

Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.

Brooklyn Simmons
Janet

I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness

Brooklyn Simmons
Kira

Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!

Brooklyn Simmons
Jessica

Great for discovering hidden-gem organizations near me.

Brooklyn Simmons
Daniel

Great for discovering hidden-gem organizations near me.

Brooklyn Simmons
Daniel
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Valerie 2025-10-24

Thrilled to see Connectbase recognized as the "Best Data Service Innovation" at the 2025 Global Connectivity Awards—innovation is driving positive change in the tech landscape! 🌟 #GoodNews #TechForGood

Connectbase Wins "Best Data Service Innovation" at the 2025 Global Connectivity Awards

StreetInsider.com

Like Comment
Honza 2025-10-24

In a California farming region, researchers are mapping rural heat to protect farmworkers

ABC News

Like Comment
Yveta 2025-10-24

Bull of the Day: Advanced Energy Industries (AEIS)

NASDAQ Stock Market

Like Comment