
EB Research Partnership
272417202
2010
New York, NY 10016 USA
ebresearch.org
EBResearch
EBResearch
1160628
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News

This is Richard Parnell—a husband, father, and now a dedicated advocate for our EB community. After learning about one of our EB warriors, John Hudson Dilgen, Richard was inspired to take action. He's embarking on a 3 week unsupported bicycle ride starting from New York Harbor https://t.co/lKywd6Orc4 (tw)

Team EBRP joined Elliana’s Hope for Healing Memorial Walk virtually on May 24th! With each step we thought of Elliana, her family and all of those living with EB 🦋 We can’t thank Elliana’s Army enough for organizing the walk in honor of Elliana and her family. With the help of https://t.co/dlBvvWMVE6 (tw)

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About the organization
- 646, H80, G12, G80 -
Specifically Named Diseases Research Fund Raising and/or Fund Distribution Specifically Named Diseases