
EB Research Partnership
272417202
2010
New York, NY 10016 USA
ebresearch.org
EBResearch
EBResearch
1160628
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At EB Research Partnership, we work to drive research and innovation to improve the lives of those with Epidermolysis Bullosa (EB). If you've used FILSUVEZ® (birch triterpenes) topical gel, your experience could provide valuable insights for others in the EB community exploring treatment options. By sharing your story, you can help raise awareness and support others on their journey. 🦋🤍 Take just two minutes to make a difference: https://ow.ly/1klp50VtpsP. For full Product Information, visit https://ow.ly/AmEe50VtpsQ, and see Patient Information at https://ow.ly/WxMz50VtpsR. (fb)

This past weekend, friends and supporters in Seattle came together at Alki Beach and Phoenecia to take the Plunge for Patterson and every child living with Epidermolysis Bullosa (EB)! ❄️💧🦋 The energy was incredible as plungers braved the icy waters to raise awareness and funds for this important cause. A huge thank you to everyone who participated, donated, and cheered them on! So far, the Seattle plunge has raised over $72,000—let’s help them reach their $90,000 goal! Plus, every donation is matched, doubling your impact. 🙌 Donate here: https://give.ebresearch.org/team/598540 You can also make a difference wherever you are by taking a Virtual Plunge! Get started at: https://give.ebresearch.org/team/595549 #PlungeForPatterson #PlungeForElodie #HealEB #CureEB #EBResearch (fb)
80 - 100
4.5
New York
About the organization
- 646, H80, G12, G80 -
Specifically Named Diseases Research Fund Raising and/or Fund Distribution Specifically Named Diseases