A Foundation Building Strength Inc

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Our mission is to find treatments for Nemaline Myopathy. To find treatments for Nemaline Myopathy

Founded

2008

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2200

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Palo Alto

Address: 3825 El Camino Real, Palo AltoWeb: Sign in to see organisation websiteFacebook: BuildingStrengthVolunteers: 35Revenue: 1461428ICO: 261761329

A Foundation Building Strength for Nemaline Myopathy Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters. Resources Support Research Upcoming Events Nemaline Myopathy Awareness Month May is Nemaline Myopathy Awareness Month and A Foundation Building Strength is excited to celebrate all month long.

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Joanna

Excited for Nemaline Myopathy Awareness Month! ๐ŸŽ‰ Letโ€™s spread the word, support research, and unite as a community to build strength and hope for those living with NM. #StrongerTogether ๐ŸŒŸ

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Joseph

How can we better engage the community to raise awareness and support for Nemaline Myopathy during Awareness Month?

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Lily

What innovative research initiatives or partnerships could A Foundation Building Strength explore to accelerate the development of treatments for Nemaline Myopathy?

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A Foundation Building Strength Inc

๐—ฌ๐—ผ๐˜‚๐—ฟ ๐˜€๐˜๐—ผ๐—ฟ๐˜† ๐—ต๐—ฎ๐˜€ ๐˜๐—ต๐—ฒ ๐—ฝ๐—ผ๐˜„๐—ฒ๐—ฟ ๐˜๐—ผ ๐—ฐ๐—ต๐—ฎ๐—ป๐—ด๐—ฒ ๐—ฒ๐˜ƒ๐—ฒ๐—ฟ๐˜†๐˜๐—ต๐—ถ๐—ป๐—ด. By taking just 15 minutes to complete the anonymous AFBS Perspectives and Priorities Survey, you are giving NM researchers and clinicians a crucial look into the lived experience of our community. The data you provide will be compiled and developed into a published paper with the assistance of neuromuscular disease experts later this year, with the results then made available to researchers and clinicians worldwide to help them deepen their understanding of the disease, giving them crucial insights they need to understand NM, refine care, and accelerate progress toward new treatments.

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Daniel

โค๏ธ So proud to support A Foundation Building Strength! Together, we can raise awareness for Nemaline Myopathy and help those who are affected by this rare muscle disorder. Letโ€™s make a difference! ๐Ÿ’ช

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Specifically Named Diseases Research Category

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