Ohio Sickle Cell Health Association Inc

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To provide education, advocacy and support statewide to individuals and families affected and at-nsk for Sickle Cell Disease through effective approaches to Sickle Cell Services.

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1979

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Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA

Address: Sickle Cell Disease Assocation of America, Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USAWeb: Sign in to see organisation websiteEmployees: 2Volunteers: 10Revenue: 382198ICO: 310968012

Ohio Sickle Cell and Health Association – Sickle Cell Disease Association of America (SCDAA / OSCHA) Sickle Cell Disease Association of America SCDAA OSCHA Sickle Cell Disease Association of America SCDAA OSCHA September is National Sickle Cell Month September is National Sickle Cell Month FDA Approves New Treatment for Sickle Cell Disease For Immediate Release December 08 2023 Today the U. S. Food and Drug Administration approved two milestone treatments Casgevy and Lyfgenia representing the first cellbased gene therapies for the treatment of sickle cell disease SCD in patients 12 years and older. Additionally one of these therapies Casgevy is the first FDAapproved treatment to utilize a type of novel genome editing technology signaling an innovative advancement in the field of gene therapy.

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Julius

1. How can community outreach programs be enhanced to raise awareness about the newly approved gene therapies for sickle cell disease and their implications for patients and families?

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Adam

πŸ‘ Big shoutout to the Ohio Sickle Cell Health Association for their continued support and advocacy! Together, we can make a difference in the lives of those affected by Sickle Cell Disease. Let’s keep pushing for education and awareness! 🌈 #SCDAA #TogetherWeCan

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Victor

🌟 So grateful for the advancements in treatment for Sickle Cell Disease! The approval of Casgevy and Lyfgenia is a huge step forward for those affected. Let’s spread awareness this National Sickle Cell Month! πŸ’™ #SickleCellAwareness #HopeForACure

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Ann

2. What role can partnerships between NGOs and healthcare providers play in improving access to the new treatments for individuals living with sickle cell disease?

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Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA

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