Global Genes
Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare Global Genes' mission is to drive change through the support of rare disease patients and families while equipping advocacy leaders with important tools, resources, mentoring, and connections to further advance awareness, education, and research.
Founded
2008
107000
X (Twitter)
29487
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342942
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Global Genes
The path to advancing rare disease research can feel overwhelming but you don’t have to go it alone. Our Next Generation Advocacy Research resource page breaks it all down. Get started with the essential resources like: - How New Drugs & Therapies Are Developed - RARE Disease Research Roadmap - Research Readiness Rubric - Guide to Sharing Patient Voices Throughout the Process Get started: https://globalgenes.
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Global Genes
What does it mean to lead with authenticity in the rare disease space. In this empowering session from the RARE Advocacy Exchange, Amy Brin challenges outdated leadership models and calls on advocates to lead from a place of truth, purpose, and resilience. If you’re looking to redefine what leadership looks like in your advocacy journey, this session is for you.
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Washington
Organisations from Global Genes
347. Paralyzed Veterans of America Spinal Cord Research Foundation
For more information about Paralyzed Veterans of America, visit www.
348. Amputee Coalition of America, Inc.
The Amputee Coalition is the leading national nonprofit serving people affected by limb loss and limb difference.
Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec.
351. VITAL VOICES GLOBAL PARTNERSHIP INC
Invest in Women.
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Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec.
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Animal sanctuary and rescue in Washington State.
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80643. South Dakota Association for Career and Technical Education Inc
Lake Area Technical College: superior, comprehensive technical education that changes lives and launches careers.
Lake Area Technical College: superior, comprehensive technical education that changes lives and launches careers.
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80647. SKY LAKES MEDICAL CENTER
Inspiring human potential through better health.
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