The path to advancing rare disease research can feel overwhelming but you don’t have to go it alone. Our Next Generation Advocacy Research resource page breaks it all down. Get started with the essential resources like: - How New Drugs & Therapies Are Developed - RARE Disease Research Roadmap - Research Readiness Rubric - Guide to Sharing Patient Voices Throughout the Process Get started: https://globalgenes.org/next-gen-advocacy-research/?utm_source=fb #RareDisease #ResearchAdvocacy #NextGenAdvocacy #PatientDrivenResearch (fb)

What does it mean to lead with authenticity in the rare disease space? In this empowering session from the RARE Advocacy Exchange, Amy Brin challenges outdated leadership models and calls on advocates to lead from a place of truth, purpose, and resilience. If you’re looking to redefine what leadership looks like in your advocacy journey, this session is for you. Watch the full session now and reconnect with your why: https://youtu.be/ntm3Uyrr6n0?si=1fo-iq6idi-IVecQ #RareAdovocacyExchange #RareDiseaseLeadership #RareDiseaseAdvocacy #GlobalGenes #LeadershipWithPurpose #AuthenticLeadership #CareAboutRare (fb)