Taylors Tale

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Taylor's Tale is a public charity dedicated to the fight against CLN1 disease and other rare diseases. Learn more at https://t.co/DI40Z2FQqk. Taylor’s Tale is one of the world’s leading voices in the fight against rare disease. Our mission is to promote public awareness of Batten disease and provide funding for important research.

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Taylor's Tale – Fighting for the one in 10 with a rare disease. Taylors Tale is a leading voice in the fight against rare disease. Founded to honor one little girl with CLN1 disease Batten disease today we work to build a better future for one in 10 Americans and 350 million people worldwide who suffer from one of more than 7000 rare diseases. By advancing breakthrough treatments for Batten disease and advocating for lifechanging public policies we are continuing Taylors powerful legacy. Recent Posts Learn about what039s going on and keep up to date.

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Margaret

What innovative strategies can we implement to raise awareness and funding for rare diseases like CLN1, and how can we engage the community more effectively?

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Taylors Tale

On International Women's Day, we salute the strong women and mothers who refuse to take “no cure” for an answer—women like our co-founder and president, Sharon King. Who are the strong women in your life. Tag them in the comments.

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Peter

Incredible work, Taylor's Tale! Together, we can shine a light on rare diseases and support the fighters like Taylor. 💪❤️ #Hope #BattenDisease

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Emil

How can collaboration between NGOs, researchers, and pharmaceutical companies improve the development of treatments for rare diseases, and what role does advocacy play in this process?

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Taylors Tale

On International Women's Day, we salute the strong women and mothers who refuse to take “no cure” for an answer—women like our co-founder and president, Sharon King. Who are the strong women in your life. Tag them in the comments.

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Nicole

So proud to see the advancements being made for those affected by rare diseases through Taylor's Tale! Let's keep advocating for a brighter future! 🌟✨ #RareDiseaseAwareness

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