ICO
331264597
Web
renusyndrome.org
Address
Northlake
RNU4-2 / ReNU Syndrome ReNU Syndrome Variants in RNU42 Uncovered as One of the Most Prevalent Causes of Neurodevelopmental Disorders Discovery Renews Hope for Affected Families Worldwide Characteristics may include Developmental Motor and Intellectual Delays Absent or Delayed Speech and Language Seizures Brain Abnormalities Small Head Size Distinct Facial Features Low Muscle Tone and Drooling Autism Spectrum Disorder Short Stature BoneSkeletal Anomalies Vision Issues and more More Information Big thanks to the researchers clinicians geneticists in these articlesfor this longawaited revelation. Parent Connection Youre not alone. ReNU hope and find community with other ReNU Syndrome parents that understand and relate to your experience. Donations Promoting more research building community and spreading awareness.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
The MED13L Foundation is a registered 501(c)(3) nonprofit.
Similar Organisations Worldwide
Aussie Kidz Charity Limited (au)
Based in Brisbane, Queensland, Aussie Kidz Charity helps disabled and under-privileged children acros.
SEAFORD DOWN'S SYNDROME AND SPECIAL NEEDS SUPPORT GROUP (uk)
We aim to provide enrichment and support for children with special needs and their families.
A user led charity.
Foundation For Angelman Syndrome Therapeutics Australia Limited (au)
FAST is the leading patient advocacy organization working to cure Angelman syndrome.
NORTH EAST AUTISM SOCIETY (uk)
For over 40 years NEAS has been empowering and supporting autistic children, young people and adults, and their families, in the North-east.
Category Fund Raising and/or Fund Distribution
Další Fund Raising and/or Fund Distribution
Discussions
Odpovědí v diskuzi
1
1. How can we improve awareness and understanding of ReNU Syndrome among healthcare professionals and the general public to ensure timely diagnosis and support for affected families?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What strategies can ReNU Syndrome United implement to foster a supportive community for parents and caregivers navigating the challenges of caring for children with neurodevelopmental disorders?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the incredible work being done by researchers and clinicians. This discovery gives so many families hope! 💙 #ReNUSyndrome
Brooklyn Simmons
Product Manager
It's amazing to connect with other parents who truly understand. We're not alone in this journey, and together we can make a difference! 🌟 #CommunitySupport #ReNUSyndrome
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
A brilliant resource for anyone who wants to do good more effectively.
Brooklyn Simmons
Product Manager
A brilliant resource for anyone who wants to do good more effectively.
Kendall Monroe
Product Manager
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
Madison Carter
Product Manager
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
Riley Bennett
Product Manager
The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
Sydney Parker
Product Manager
I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
Jordan Blake
Product Manager
Great for discovering hidden-gem organizations near me.
Brooklyn Simmons
Product Manager
The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google