Renu Syndrome United

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Northlake

Address: 3316 Sandpiper Cir, NorthlakeWeb: Sign in to see organisation websiteICO: 331264597

RNU4-2 / ReNU Syndrome ReNU Syndrome Variants in RNU42 Uncovered as One of the Most Prevalent Causes of Neurodevelopmental Disorders Discovery Renews Hope for Affected Families Worldwide Characteristics may include Developmental Motor and Intellectual Delays Absent or Delayed Speech and Language Seizures Brain Abnormalities Small Head Size Distinct Facial Features Low Muscle Tone and Drooling Autism Spectrum Disorder Short Stature BoneSkeletal Anomalies Vision Issues and more More Information Big thanks to the researchers clinicians geneticists in these articlesfor this longawaited revelation. Parent Connection Youre not alone. ReNU hope and find community with other ReNU Syndrome parents that understand and relate to your experience. Donations Promoting more research building community and spreading awareness.

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Joseph

2. What strategies can ReNU Syndrome United implement to foster a supportive community for parents and caregivers navigating the challenges of caring for children with neurodevelopmental disorders?

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Martin

It's amazing to connect with other parents who truly understand. We're not alone in this journey, and together we can make a difference! 🌟 #CommunitySupport #ReNUSyndrome

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Peter

So grateful for the incredible work being done by researchers and clinicians. This discovery gives so many families hope! 💙 #ReNUSyndrome

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Lena

1. How can we improve awareness and understanding of ReNU Syndrome among healthcare professionals and the general public to ensure timely diagnosis and support for affected families?

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Collected information

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Northlake

Organisations from Renu Syndrome United

1. CHICAGOLAND ANIMAL RESCUE NFP

We are an all volunteer foster home rescue.

2. Barbara Barnes Foundation

Nsongwe is a poor village located outside of Livingstone, Zambia.

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