
Cure HHT - The Cornerstone of the HHT Community
Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
223115041
EIN
1990
Founded
hht.org
Web
curehht
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hht.org
Facebook (10000)
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About the organization
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Be part of uncovering the real impact of HHT Cure HHT and Diagonal Therapeutics are teaming up to uncover the hidden challenges and daily realities of living with HHT. If you or someone you know is living with HHT this remote observational study offers a unique chance to help researchers see what living with HHT truly looks like. Your involvement will help uncover how HHT affects daily life healthcare needs and overall quality of life. What is HHT HHT affects more than 1.
Alliance/Advocacy Organizations Fund Raising and/or Fund Distribution Birth Defects, Genetic Diseases
23 Vacancy
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