Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

Alliance/Advocacy Organizations Fund Raising and/or Fund Distribution Birth Defects, Genetic Diseases

Founded

1990

Facebook

10000

X (Twitter)

1458

Address

Web: Sign in to see organisation websiteFacebook: hht.orgX (Twitter): curehhtEmployees: 18Revenue: 3740865ICO: 223115041

Cure HHT - The Cornerstone of the HHT Community Be part of uncovering the real impact of HHT Cure HHT and Diagonal Therapeutics are teaming up to uncover the hidden challenges and daily realities of living with HHT. If you or someone you know is living with HHT this remote observational study offers a unique chance to help researchers see what living with HHT truly looks like. Your involvement will help uncover how HHT affects daily life healthcare needs and overall quality of life. What is HHT HHT affects more than 1.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Terry

I’m so proud to be part of the Cure HHT community! Together, we can make a difference for all those affected by HHT. Let’s share our stories and help researchers understand the daily challenges we face. 💪✨

Like Comment

Ellen

2. What role do patient experiences play in shaping research priorities for HHT, and how can we better incorporate these perspectives into the research process?

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Rudolph

Thank you for all the incredible work you're doing for the HHT community! 🙌 It's so important to raise awareness and support research for this often-misunderstood condition. Let's keep pushing for a cure! ❤️

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Peter

1. How can we improve awareness and understanding of HHT within the medical community to reduce misdiagnosis and improve patient outcomes?

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