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Jonah's Just Begun – Foundation to Cure Sanfilippo Inc. is a 501(c)3. JJB raises funds and then distributes them to academic researchers focused on Sanfilippo type C. We have two goals: first, to drive the science that will ultimately lead to a cure for Sanfilippo type C; and second, to raise awareness for all rare diseases. We also empower and encourage others affected by rare diseases to advocate for cures.
272957730
EIN
Levittown, NY 11756 USA
Address
jonahsjustbegun.org
Web
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About the organization
- H01, P05, G98 -
The Final Countdown Gene Therapyhave you ever heard of it. Sanfilippo Syndromehave you ever heard of it. If No than consider yourselves fortunate. The children and families suffering from rare genetic diseases are not so fortunate.
Alliance/Advocacy Organizations Research Institutes and/or Public Policy Analysis Pediatrics
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