JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN
Jonah's Just Begun – Foundation to Cure Sanfilippo Inc. is a 501(c)3. JJB raises funds and then distributes them to academic researchers focused on Sanfilippo type C. We have two goals: first, to drive the science that will ultimately lead to a cure for Sanfilippo type C; and second, to raise awareness for all rare diseases. We also empower and encourage others affected by rare diseases to advocate for cures.
ICO
272957730
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jonahsjustbegun.org
Address
Levittown
Home The Final Countdown Gene Therapyhave you ever heard of it. Sanfilippo Syndromehave you ever heard of it. If No than consider yourselves fortunate. The children and families suffering from rare genetic diseases are not so fortunate.
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Discussions
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What innovative fundraising strategies can NGOs like JJB and the Cure Sanfilippo Foundation employ to raise awareness and support for Sanfilippo Syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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How can community engagement and education about rare genetic diseases like Sanfilippo Syndrome be enhanced to foster greater understanding and empathy among the general public?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
So proud of the incredible work being done by Jonah's Just Begun! Together, we can raise awareness and drive research toward a cure for Sanfilippo Syndrome! 💙💪 #CureSanfilippo
Brooklyn Simmons
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Every child deserves a chance at a brighter future. Let’s unite our efforts to support families battling rare diseases and bring hope to those who need it most! 🌟❤️ #HopeForSanfilippo
Brooklyn Simmons
Product Manager
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