JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN
Jonah's Just Begun – Foundation to Cure Sanfilippo Inc. is a 501(c)3. JJB raises funds and then distributes them to academic researchers focused on Sanfilippo type C. We have two goals: first, to drive the science that will ultimately lead to a cure for Sanfilippo type C; and second, to raise awareness for all rare diseases. We also empower and encourage others affected by rare diseases to advocate for cures.
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Levittown
Home The Final Countdown Gene Therapyhave you ever heard of it. Sanfilippo Syndromehave you ever heard of it. If No than consider yourselves fortunate. The children and families suffering from rare genetic diseases are not so fortunate.
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Levittown
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