LYMPHATIC MALFORMATION INSTITUTE
TO IDENTIFY, ORGANIZE AND FUND RESEARCH AND STUDIES TO ADVANCE THE UNDERSTANDING OF THE HUMAN LYMPHATIC SYSTEM AND ITS MALFORMATIONS
Founded
2010
Web
lmiresearch.org
Address
Bethesda
LMI Our Impact Research Funding To Date 8000000 in research grants Research Publications 20 publications resulting from 45 funded projects and presentations conducted by 36 investigators Research Network 40 investigatorsover 10 countries represented Complex Lymphatic Anomaly CLA is an umbrella term encompassing four overlapping but distinct rare diseases of the lymphatic system Gorham Stout Disease GSD Generalized Lymphatic Anomaly GLA Kaposiform Lymphangiomatosis KLA and Central Conducting Lymphatic Anomaly CCLA. CLAs are characterized by growth of abnormal lymphatic tissue involving both soft tissue and bone leading to chronic and debilitating conditions that can be fatal. The LMI is a 501c3 organization that was established in 2010 to support research that drives our understanding of the pathobiology and genetics of CLAs. The institute also supports and funds clinical and translational research to better define the impact of CLAs on our patients testing of new therapies and finding biomarkers of disease activity and treatment response.
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Discussions
Odpovědí v diskuzi
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1. What innovative strategies can NGOs like the Lymphatic Malformation Institute implement to enhance patient engagement and involvement in the research process for Complex Lymphatic Anomalies?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can we effectively raise awareness and educate the public about the rare diseases encompassed under Complex Lymphatic Anomalies, and what role can NGOs play in this initiative?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So inspiring to see the incredible work LMI is doing! Your dedication to advancing research and improving lives for those affected by CLAs is making a real difference. 💖 #LymphaticHealth #ResearchMatters
Brooklyn Simmons
Product Manager
I’m so excited about the impact LMI is having on the fight against lymphatic malformations! 🌟 Let’s keep pushing for more funding and awareness to support this vital research! #TogetherForChange #LMI
Brooklyn Simmons
Product Manager
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