Bobby Jones Chiari & Syringomyelia Foundation

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The Bobby Jones Chiari & Syringomyelia Foundation is built on leadership, vision & commitment to find a cure for #Chiari, #syringomyelia & related disorders. Bobby Jones Chiari & Syringomyelia Foundation is a 501(c)(3) nonprofit with a mission to advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related disorders. To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related disorders.

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2007

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Address: 29 Crest Loop, Staten IslandWeb: Sign in to see organisation websiteFacebook: bobbyjonescsf X (Twitter): bobbyjonescsfEmployees: 5Volunteers: 150Revenue: 979400ICO: 261316274

Bobby Jones CSF – Bobby Jones Chiari & Syringomyelia Foundation BUILT ON LEADERSHIP VISION AND COMMITMENT TO FIND A CURE BUILT ON LEADERSHIP VISION AND COMMITMENT TO FIND A CURE BUILT ON LEADERSHIP VISION AND COMMITMENT TO FIND A CURE BUILT ON LEADERSHIP VISION AND COMMITMENT TO FIND A CURE Our mission To advance knowledge through research and to educate the medical allied sciences and lay community about Chiari malformation syringomyelia and related disorders I AM A PATIENT Have you or your loved one been diagnosed with Chiari malformation syringomyelia EhlersDanlos syndrome or another related disorder. Maybe youve had a diagnosis for a long time and you are looking for more information. Visit I am a Patient to learn more about things that matter the most to you. Youll find more information about the disorders and better understand what to expect from surgery.

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Bobby Jones Chiari & Syringomyelia Foundation

We will see you at MUSC as Dr. Rowland presents on putting all of the pieces together to provide the best care for Chiari and syringomyelia patients. Register HERE: igfn.

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Bobby Jones Chiari & Syringomyelia Foundation

Excited to speak with Dr. Cohen Solomon on October 30th. Register and submit your Q's ahead of time HERE: igfn.

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Rachel

Amazing work, Bobby Jones Foundation! Your dedication to educating the community about Chiari and syringomyelia is truly inspiring. Together, we can help spread awareness! πŸ’™ #FindACure

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Daniel

I love how the foundation brings together patients, doctors, and researchers to advance knowledge and support! Every step you take is a step closer to finding a cure. Keep it up! πŸ™Œ #ChiariAwareness

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Patricia

How can we create more collaborative partnerships between researchers and medical professionals to accelerate advancements in treatments for Chiari malformation and related disorders?

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Veronica

What innovative strategies can NGOs employ to enhance awareness and education about Chiari malformation and syringomyelia in underserved communities?

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