Phelan McDermid Syndrome Foundation

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Official site of the Phelan-McDermid Syndrome Foundation. We support families and fund research. #PMS #PMSF #raredisease #specialneeds #pmsfad Our official Foundation Facebook page aims to raise awareness of Phelan-McDermid syndrome It is the mission of the Phelan-McDermid Syndrome Foundation to make today better and the future brighter for everyone living with Phelan-McDermid syndrome โ€” from the moment of diagnosis to the delivery of treatments and cures.

Founded

2002

Facebook

9300

X (Twitter)

1325

Address

Osprey

Address: 8 Sorrento Dr, OspreyWeb: Sign in to see organisation websiteFacebook: PMSF22q13X (Twitter): Phelan_McDermidEmployees: 11Volunteers: 50Revenue: 1062761ICO: 43673104

Home - Phelan-McDermid Syndrome Foundation - The support you need today, the treatments and cures you're counting on tomorrow. PhelanMcDermid Syndrome Foundation. PhelanMcDermid syndrome is a rare genetic disorder that can affect many critical functions in a persons body from learning and communicating to eating and sleeping. The PhelanMcDermid Syndrome Foundation is doing everything it takes to make today better and the future brighter for everyone living with this complex condition from the moment of diagnosis to the delivery of treatments and cures. Find Information Support About the Syndrome New Diagnosis Latest Research Resource Library News Updates Events Gatherings Connect Care Cure Join the Phamily Families supporting families is the driving force behind the PhelanMcDermid Syndrome Foundation.

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News about from their social media (Facebook and X).

Phelan McDermid Syndrome Foundation

Get ready to shop. ๐Ÿ›๏ธ The first-ever PMSF online store opens June 2, featuring a curated collection of branded gear designed to celebrate and connect our community. ๐Ÿ—“๏ธ But heads up: The store will only be open from June 2โ€“22.

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Phelan McDermid Syndrome Foundation

๐ŸŽ‰ We did itโ€”THANK YOU. To everyone who moved, donated, fundraised, and supported Raising Hope Through Movement, we are so grateful. ๐Ÿ’š Together, our community raised $85,033.

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Terry

2. What are some innovative ways the Phelan-McDermid Syndrome Foundation can enhance its research funding efforts to accelerate the development of treatments?

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Jessica

๐ŸŒŸ Thank you for spreading awareness about Phelan-McDermid syndrome! Together, we can make a difference and bring hope to families navigating this journey. ๐Ÿ’ชโœจ #PMSF #UnitedForHope

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Linda

๐Ÿ’œ So grateful for the incredible work being done by the Phelan McDermid Syndrome Foundation! Your support and resources are a lifeline for so many families facing this challenge. #Hope #Community

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Jennifer

1. How can we further raise awareness and understanding of Phelan-McDermid syndrome within our communities to support affected families?

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