Cystinosis Research Network, Inc.
Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research. The Cystinosis Research Network, founded in 1996, grew out of the need to find improved treatments and a cure for cystinosis. Cystinosis Research Network is comprised entirely of volunteers that raise funds for cystinosis research, increase cystinosis education and awareness, and support cystinosis families.
Founded
1996
2100
X (Twitter)
801
Address
Lake Forest
Cystinosis Research Network Making Lives Better Starts Here The Cystinosis Research Networks vision is the acceleration of the discovery of a cure development of improved treatments and enhancement of quality of life for those with cystinosis. Support The Cystinosis Research Network offers a variety of educational materials and research articles along with opportunities to connect with others online and inperson. Research The Cystinosis Research Networks vision is the discovery of improved treatments and ultimately a cure for cystinosis. Education and Awareness The Cystinosis Research Network educates the public and professional community about cystinosis is actively involved in the rare disease community and offers educational scholarships to individuals with cystinosis and their siblings.
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Alliance/Advocacy Organizations Category
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173. Cystinosis Research Network, Inc.
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.
175. NATIONAL UREA CYCLE DISORDERS FOUNDATION
Join us in our fight to conquer urea cycle disorders.
Alliance/Advocacy Organizations Category
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43. Cystinosis Research Network, Inc.
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.
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Specifically Named Diseases Research Category
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https://linktr.
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52. Cystinosis Research Network, Inc.
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.
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Lake Forest
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VISION Calvary Chapel with Pastor Garid Beeler is located in Irvine, California, and is a part of the Calvary Chapel Association of Churches.
22. Cystinosis Research Network, Inc.
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.
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We connect people and inspire curiosity by exhibiting, preserving, sharing and celebrating history.
24. Lake Forest Open Lands Association
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The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.
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