Cystinosis Research Network, Inc.
Cystinosis Research Network
43323789
1996
Lake Forest, IL 60045 USA
cystinosis.org
CystinosisCRN
CystinosisResearch
Podobné organizace
24 Hours for Hank Inc |
|
Cystinosis Research Foundation |
|
International Cystinuria Foundation Incorporated |
|
Aarav S Time To Shine |
|
Tinas Hope for A Cure |
Podobné organizace global
CWMNI CYNNAL |
|
CYSTINOSIS FOUNDATION OF THE UK |
|
CILIOPATHY ALLIANCE |
|
TIMOTHY SYNDROME ALLIANCE (TSA) |
|
Cystic Fibrosis Canada/Fibrose Kystique Canada |
More from Lake Forest
BCS FOUNDATION |
|
ST FRANCIS OF ASSISI ANIMAL RESCUE |
|
THE WRESTLING COLLECTIVE |
|
IHOPEOC INC |
|
Lake Forest High School APT |
Similar social media (2901)
YWCA BUCKS COUNTY2902 |
|
Green Light New York Inc2903 |
|
Social Diversity for Children Foundation2902 |
|
Healthy and Uplifted2902 |
|
Tide Wrestling Boosters Inc2903 |
More Alliance/Advocacy Organizations
SIMON FOUNDATION |
|
National Headache Foundation |
|
Us TOO International, Inc. |
|
STOP FOODBORNE ILLNESS INC |
News
Navigating the Current Together🌊CRN Conference Zoom Call . First-timers, former attendees, or feeling curious, this call is your sneak peek at what’s coming at the GR conference! 🗓 Wednesday, June 4 ⏰ 7 PM ET https://t.co/mUdO1Vrt8s #cystinosis #CRNGrandRapids #RareEvent https://t.co/11DobmSI6u (tw)
Navigating the Current Together CRN Conference Zoom Call� First-timers, former attendees, or feeling curious, this Zoom call is your sneak peek at what’s coming to Grand Rapids conference! Join us and head to GR feeling confident, excited, and ready to learn and connect. � 🗓 Wednesday, June 4�⏰ 7 PM ET�https://tinyurl.com/CRNgrandRapids (fb)
Poslední diskuze
Nearby
20
4.5
Lake Forest
About the organization
- G01, H01, H80 -
Making Lives Better Starts Here The Cystinosis Research Networks vision is the acceleration of the discovery of a cure development of improved treatments and enhancement of quality of life for those with cystinosis. Support The Cystinosis Research Network offers a variety of educational materials and research articles along with opportunities to connect with others online and inperson. Research The Cystinosis Research Networks vision is the discovery of improved treatments and ultimately a cure for cystinosis. Education and Awareness The Cystinosis Research Network educates the public and professional community about cystinosis is actively involved in the rare disease community and offers educational scholarships to individuals with cystinosis and their siblings.
Alliance/Advocacy Organizations Alliance/Advocacy Organizations Specifically Named Diseases Research
