PCD KS FOUNDATION
Working together to find a cure and improve care for those with ciliary disorders and their families by increasing awareness, research and support. Promoting education, advocacy and the search for the cure for Primary Ciliary Dyskinesia. TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD).
Founded
2004
5000
X (Twitter)
809
Address
Rochester
PCD Foundation - Helping those affected by Primary Ciliary Dyskinesia FIND A CENTER PCD FOUNDATION REGISTRY PCD FAQ DIAGNOSIS TREATMENT CLINICAL CENTERS GET INVOLVED Want to Get Involved. Join Us on our mission to improve the lives of those affected by primary ciliary dyskinesia PCD. Resources Contact Us Donate PCD Foundation is registered 501c3. All donations are 100 tax deductible.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
CERN Foundation (Collaborative Ependymoma Research Network)
Mission: Committed to improving the care and outcome of people with ependymoma through community support and research efforts.
We are the only organization in the U.
The Lymphoma Research Foundation’s mission is to realize the promise of science to eradicate lymphoma and serve the community touched by this disease.
NATIONAL ORGANIZATION FOR TARDIVE DYSKINESIA INC
We raise awareness, advocate and develop tools for the estimated 750,000 people in the U.
Similar Organisations Worldwide
PRIMARY CILIARY DYSKINESIA SUPPORT UK (uk)
We talk about PCD as widely as possible and champion research to improve its diagnosis, management and treatment.
PCD Research is a UK registered charity that raises money to fund life-saving research for Primary Ciliary Dyskinesia.
The Dyslexia Association is a registered charity providing services and support for Neurodiverse people of all ages.
More from Rochester
We currently have our worship service at 9:30am.
ALDERSGATE ROCHESTER UNITED METHODIST CHURCH
The United Methodist Church is a worldwide connection of close to 10 million members in over 100 countries including Africa, Asia, Europe and the United States.
Similar social media (5809)
Greater Springfield Habitat for Humanity
We are a nonprofit organization that builds safe, decent, affordable homes with local families.
Engaging and empowering Allegheny County communities to eliminate litter and illegal dumping.
Let There Be Mom (LTBM) was created to preserve the legacies of moms and dads with life threatening illnesses.
We are One Y For All, focused on Youth Development, Healthy Living, and Social Responsibility.
Dallas Truth Racial Healing & Transformation
Our mission is to create a radically inclusive city by addressing race and racism through narrative change, relationship building and equitable policies and practices.
Category Alliance/Advocacy Organizations
Working toward treatments and a cure for Krabbe & Leukodystrophies, advocating for newborn screening and supporting those affected by these diseases.
Camp Good Days & Special Times, Inc.
Dedicated to improving the lives of children, families, and adults impacted by cancer or sickle cell anemia.
From Social media
News about PCD KS FOUNDATION from their social media (Facebook and X).
- PCD KS FOUNDATION
- 2025-06-11
Deadline Clarification: LOIs for PCDF Network for Clinical Trials Regional Hubs Due Friday, June 13 - https://t. (tw) ... more
Liked (0) Commented (0)
- PCD KS FOUNDATION
- 2025-06-10
PCDF NCT Regional Hub Proposal: Zoom Recording and Upcoming Deadline - https://t. (tw) ... more
Liked (3) Commented (0)Discussions
Odpovědí v diskuzi
1
- What are some effective strategies for raising awareness about Primary Ciliary Dyskinesia in local communities?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can we enhance collaboration between researchers and healthcare providers to accelerate the search for a cure for ciliary disorders?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 So proud to support the PCD KS Foundation! Together, we can raise awareness and advocate for those affected by Primary Ciliary Dyskinesia. Let’s join hands for a cure! 🌟 #PCDawareness
Brooklyn Simmons
Product Manager
🌍 Education and research are key! Grateful for organizations like PCD KS Foundation that work tirelessly to improve care and support for families. Every little effort helps pave the way for a brighter future! 🙌❤️ #CurePCD
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
Eduo connects you to causes that actually matter to you.
Brooklyn Simmons
Product Manager
The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
Kendall Monroe
Product Manager
Clean, community-driven, and full of heart — love it.
Madison Carter
Product Manager
Great for discovering hidden-gem organizations near me.
Riley Bennett
Product Manager
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Sydney Parker
Product Manager
Finally, a clear and organized way to explore local and global charities.
Jordan Blake
Product Manager
A brilliant resource for anyone who wants to do good more effectively.
Brooklyn Simmons
Product Manager
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google