
Neurofibromatosis Incorporated Northeast
Dedicated to finding a cure. Creating a community of hope & support for patients, families, and all those touched by NF. NF Northeast is a non-profit org incorporated in 1988 that advocates for those with neurofibromatosis Vision: A world where the burden of neurofibromatosis does not exist. Mission: To bring hope to those affected by neurofibromatosis and allied disorders. Patients and families are at the heart of NF Northeast’s mission. We provide advocacy, support, and awareness while promoting research and enhanced clinical care.

ICO
43013709
4300
X (Twitter)
1231
Address
Burlington
We help NF patients through their Journey of Hope - Neurofibromatosis Northeast NF Northeast is the organization that helps patients through their Journey of Hope. A diagnosis of NF1 NF2related schwannomatosis or schwannomatosis can happen to anyone at any age and at any time. Our Vision A world where the burden of neurofibromatosis does not exist. Our Mission To bring hope to those affected by neurofibromatosis and allied disorders.
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🌟 Get ready, Newburyport. 🌟 Join us on Sunday, October 26, 2025 for the Half Marathon, Relay, & 5K—every step is a chance to challenge yourself, inspire hope, and support the NF community 💙 🏁 Race Times: Half Marathon & Relay: 9:15am 5K: 9:25am Run solo, team up for the relay, or tackle the 5K—your miles make a difference. Don’t wait—your next personal best could help change lives.
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We are the global leader in funding & driving innovative research that will END NF.

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