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132298956
1978
New York, NY 10017 USA
ctf.org
ChildrensTumor
childrenstumor
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More Nerve, Muscle, and Bone Research

Every action—big or small—strengthens our collective impact. That’s why we’ve created this NF Awareness Month Toolkit—a powerful collection of resources designed to help you turn awareness into action. Whether you’re sharing on social media, lighting up landmarks, organizing community events, or starting conversations, this toolkit gives you everything you need to make a difference. Inside, you’ll find sample messages, creative ideas, easy access to NF resources, and step-by-step guidance to help you raise your voice and spread awareness in your own way. This movement thrives on grassroots energy, and you are the key to making it stronger. Visit ctf.org/unlock to download the action toolkit, make a pledge to take action, and be a force for change! #endnf (fb)

👏 Congratulations to Ian Desmond on receiving the Power of Baseball Award from Washington Nationals Philanthropies! This honor recognizes his extraordinary commitment to using the game as a force for good—and we couldn’t agree more. Ian’s journey with NF advocacy began with a friendship—one that changed his life. Ethan Brown, a young man who lived with NF2-related schwannomatosis, invited the world to see the realities of NF through his words, humor, and strength. As Ethan and Ian bonded deeply over the years, Ian also championed NF awareness and research by speaking out, meeting with families, and helping raise vital funds. Thank you, Ian, for being a true champion for the NF community. 💙💚 We’re incredibly honored to have you in this fight and we’re proud to celebrate you and everything you do to help #EndNF. #MakeNFVisible #Nats4Good https://curlyw.mlblogs.com/nationals-philanthropies-honors-former-player-ian-desmond-with-power-of-baseball-award-fc1a46a17bcc (fb)
80 - 100
4.5
New York
About the organization
- H50, H80, H30 -
Its a GO. FDA Approves Drug Its the secondever FDAapproved treatment for NF1and the firstever for adults. Childrens TumorFoundation is theDrug Discovery Engine for NF Pioneering more solutions and better options faster for all NF patients. Ensuring NF Research is OurPriority in Washington DC CTF is steadfast in advocating for federal research fundingthat drives progress for NF patients.
Nerve, Muscle, and Bone Research Specifically Named Diseases Research Cancer Research