
Nat Fabry Diseas Fdn
202944028
Hillsborough, NC 27278 USA
fabrydisease.org
FabryDisease1
FabryDisease
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News

Hi everyone, April is Fabry Disease Awareness Month, and we're celebrating by sharing Fabry facts every weekday. Did you know about our updated Fabry Specialist Database? The National Fabry Disease Foundation has recently re-launched its provider database! https://www.fabrydisease.org/find-a-fabry-specialist . Please select this link rather than the inactive link in the image below. To search, select a state in the field next to the “filters” icon. Then, select the facility/clinic name to access the facility and provider information. If you have Fabry and your provider is not listed, please let us know. Providers are listed as “Prescribing Providers” (Physicians, Physician Assistants, and Nurse Practitioners) and Coordinating Providers (Genetic Counselors, Nurses, and other appropriate staff members). Providers: to add your clinic to the Find A Fabry Specialist database, please email us at info@fabrydisease.org. Contact us by email at info@fabrydisease.org or by phone at 800-651-9131. The NFDF Team (Jerry, Casey, and Hannah) #Fabry #FabryDisease #FabryAwareness #fabrydiseaseawareness #FabryDiseaseAwarenessMonth #raredisease #nationalfabrydiseasefoundation #influenceyourfabryoutcomes (fb)
