
Home | Hermansky-Pudlak Syndrome Network
113283268
1992
Oyster Bay, NY 11771 United States
hpsnetwork.org
HPSNetwork
hpsnetwork
Podobné organizace
The Global Foundation for Peroxisomal Disorders |
|
AMOUR SCIENCE FOUNDATION |
|
Baker-Gordon Syndrome Foundation |
|
DHPS FOUNDATION |
|
SOFT BONES INCTHE US |
Podobné organizace global
HUGHES SYNDROME FOUNDATION |
|
THE FREYA FOUNDATION |
|
STARGARDT'S CONNECTED |
|
HME - THE NEW GENERATION |
|
CRELD1 WARRIORS |
More from Oyster Bay
Pets for Heroes Corp |
|
American Sailboat Racing Foundation Inc |
|
YOLO Strong Inc. |
|
Happily Handsome Inc |
|
Teddy in A Box Inc |
Similar social media (3509)
More Human Service Organizations
Rielo Institute for Integral Development |
|
Vets-Help Org, Inc. |
|
Bbbbjets of America Ltd |
|
Community Solidarity Inc |
News

What’s in my bag: chronic illness edition 💕 Have you ever wondered what an HPSer might like to keep with them in their bag? Cassandra was kind enough to give us a tour of what’s inside! (fb)

Please help us congratulate Carmen on her recent lung transplant. Carmen is a pillar of the HPS community and has made such an incredible impact on our network. Please continue to send her well wishes of healing. (fb)

Poslední diskuze
Nearby
5
4.5
Oyster Bay
About the organization
- P20 -
Conference Ad Hoc Group for Medical Research welcomes Congress Community Champions for Disability Health Challenge finalist What is HPS. HermanskyPudlak Syndrome HPS is a genetic metabolic disorder characterized by albinism visual impairment and a platelet dysfunction that results in prolonged bleeding. Some people with HPS may develop other complications depending on the HPS gene involved these include inflammatory bowel disease pulmonary fibrosis and kidney disease. Currently there are 11 known types of HPS.
Human Service Organizations