Hermansky Pudlak Syndrome Network Inc
Hermansky-Pudlak Syndrome, a type of albinism that causes low vision as well as a bleeding disorder. It can cause a Crohns-like GI problem/pulmonary fibrosis The HPS Network is a 501c3 non-profit serving families with Hermansky-Pudlak Syndrome and other albinism-related syndromes. Our facebook page is designed to provide news to our community. THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.
Founded
1992
2500
X (Twitter)
1009
Address
Oyster Bay
Home | Hermansky-Pudlak Syndrome Network Conference Ad Hoc Group for Medical Research welcomes Congress Community Champions for Disability Health Challenge finalist What is HPS. HermanskyPudlak Syndrome HPS is a genetic metabolic disorder characterized by albinism visual impairment and a platelet dysfunction that results in prolonged bleeding. Some people with HPS may develop other complications depending on the HPS gene involved these include inflammatory bowel disease pulmonary fibrosis and kidney disease. Currently there are 11 known types of HPS.
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Human Service Organizations Category
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Oyster Bay
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5. Hermansky Pudlak Syndrome Network Inc
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