Hermansky Pudlak Syndrome Network Inc
Home | Hermansky-Pudlak Syndrome Network
Hermansky-Pudlak Syndrome, a type of albinism that causes low vision as well as a bleeding disorder. It can cause a Crohns-like GI problem/pulmonary fibrosis The HPS Network is a 501c3 non-profit serving families with Hermansky-Pudlak Syndrome and other albinism-related syndromes. Our facebook page is designed to provide news to our community.
113283268
EIN
1992
Founded
Oyster Bay, NY 11771 United States
Address
hpsnetwork.org
Web
HPSNetwork
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hpsnetwork
Facebook (2500)
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Conference Ad Hoc Group for Medical Research welcomes Congress Community Champions for Disability Health Challenge finalist What is HPS. HermanskyPudlak Syndrome HPS is a genetic metabolic disorder characterized by albinism visual impairment and a platelet dysfunction that results in prolonged bleeding. Some people with HPS may develop other complications depending on the HPS gene involved these include inflammatory bowel disease pulmonary fibrosis and kidney disease. Currently there are 11 known types of HPS.
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