Sanfilippo Research Foundation, Inc.
SRF/Ben's Dream was formed in celebration of Ben's 5th birthday. It is dedicated to promoting awareness and raising funds to support research aimed at finding a cure for all types of Sanfilippo Syndrome (MPS III), a rare and fatal genetic disorder. Benjamin Siedman had Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben and thousands of children afflicted like him have a life expectancy between 12 and 20 years. There is no treatment. There is no cure . . . Only hope. Right now Doctors can do little for Sanfilippo's symptoms and nothing to stop the catastrophic regression Ben faces. That is why we created the Sanfilippo Research Foundation. Our mission is to promote awareness and raise funds to support research aimed at finding a cure for all types of Sanfilippo Syndrome so Benjamin's friends can realize their dreams.
ICO
43565765
1600
Web
Sign in to see organisation website
Address
Wellesley
From Social media
News about from their social media (Facebook and X).
Data about organisation
Birth Defects, Genetic Diseases Research Category
Organisations with similar rank to Sanfilippo Research Foundation, Inc. in category Birth Defects, Genetic Diseases Research
The PURA Syndrome Foundation is a global non-profit organisation.
Official Facebook Page for DYRK1A Syndrome International Association a nonprofit for DYRK1A Syndrome.
40. Sanfilippo Research Foundation, Inc.
SRF/Ben's Dream was formed in celebration of Ben's 5th birthday.
41. LANCASTER CLEFT PALATE CLINIC
The Lancaster Cleft Palate Clinic is a not-for-profit organization dedicated to improving the quality of life of infants, children, and adults through comprehensive coordinated treatment of craniofacial conditions.
Collaboration and research for genetic medicine for Pyruvate Dehydrogenase Complex Deficiency.
Brain Disorders Category
Organisations with similar rank to Sanfilippo Research Foundation, Inc. in category Brain Disorders
36. Sanfilippo Research Foundation, Inc.
SRF/Ben's Dream was formed in celebration of Ben's 5th birthday.
37. Global Coalition for Adaptive Research Inc
Global Coalition for Adaptive Research (GCAR) is a nonprofit organization committed to accelerating the discovery and development of treatments for patients with rare and deadly diseases.
Nonprofit dedicated to brain donation for many neurological disorders, including Parkinson's Disease, Lewy Body Dementia, Frontotemporal Dementia, etc.
Fund Raising and/or Fund Distribution Category
Organisations with similar rank to Sanfilippo Research Foundation, Inc. in category Fund Raising and/or Fund Distribution
Batten disease is a rare, inherited disorder of the nervous system that usually begins in childhood.
152. THE GUARDIAN BRAIN FOUNDATION
The Guardian Brain Foundation was created in Loving memory of my brother Dennis who was succomed by a cancerious brain tumor, and my father from CJD.
153. Sanfilippo Research Foundation, Inc.
SRF/Ben's Dream was formed in celebration of Ben's 5th birthday.
AIM Youth Mental Health is building a movement dedicated to the mental health of children, teens, and young adults by raising awareness and funding clinical research to find and disseminate more effective treatments.
155. Power Over Parkinsons Disease Foundation
Power Over Parkinson's is a nonprofit supporting those with PD through exercise/wellness, & education.
Wellesley
Organisations from Sanfilippo Research Foundation, Inc.
Moving Health is a US based 501(c)(3) organization developing motorcycle ambulances for rural areas in frontier markets through local partnerships.
14. Wellesley Theatre Project Inc.
Wellesley Theatre Project is a nationally recognized, award wining, nonprofit arts academy that offe.
15. Sanfilippo Research Foundation, Inc.
SRF/Ben's Dream was formed in celebration of Ben's 5th birthday.
Jane Does Well is the only non-profit organization in Mass providing divorce care, support, educational programs and critical support programs to women and mothers, free of charge, during a time of emotional upheaval and financial hardship.
Musical organization founded by oboist Peggy Pearson in 1996, seeking to foster the appreciation and.
Interesting nearby
Interesting organisations close by to residence of Sanfilippo Research Foundation, Inc.
Sanfilippo Research Foundation, Inc.
SRF/Ben's Dream was formed in celebration of Ben's 5th birthday.
Founded in December 2013, Usher 1F Collaborative is a 501c3 nonprofit foundation whose mission is to fund medical research to find an effective treatment to save or restore the vision of those with Usher Syndrome type 1F.
Similar social media (1600)
Organisations with similar social media impact to Sanfilippo Research Foundation, Inc.
138531. Massachusetts Association of Landscape Professionals Inc
Smart business.
At Family Reentry, we address the often-intertwining problems of behavioral health, domestic violence, reentry, recidivism, and risks to youth by offering evidence-based interventions to provide support and effect positive change.
138533. Sanfilippo Research Foundation, Inc.
SRF/Ben's Dream was formed in celebration of Ben's 5th birthday.
138534. Friends of Crawford Park Inc
Crawford Park is a 36-acre preserve located in Rye Brook, New York.
138535. Windhorse Sanctuary Inc
Non-Profit Sanctuary for abused, neglected, or displaced horses, dogs, and cats.
Join us and make a difference for the future!
Clean, community-driven, and full of heart — love it.
Catherine
Transparent, useful, and beautifully designed.
Eve
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Paul
Finally, a clear and organized way to explore local and global charities.
Yvette
Like Wikipedia for nonprofits — but even more inspiring.
Eve
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Daniel
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Lubos
2025-10-21
Just in! 💪 Recent research from University College Cork shows that exercise can help combat depression-like behaviors from high-fat, high-sugar diets. Let's get moving and take care of our mental health! #PositiveNews #MentalHealthMatters #ExerciseForWellbeing
Exercise can mitigate depression-like behaviors induced by high-fat, high-sugar diets
News-Medical.net
Like Comment
Susan
2025-10-21
"Exciting news from Reading! 🎉 The Healthy Homes program is making a positive impact by improving safety for low-income families. Kudos to Caitlin Kammerer for her dedication to creating healthier living environments! 🌟🏡 #HealthyHomes #CommunitySupport #PositiveChange"
Healthy Homes program makes Reading homes safer for low-income residents
Yahoo
Like Comment
Monica
2025-10-21
Exciting news! 🎶 Warren Haynes is set to host the 33rd Christmas Jam on December 13, featuring amazing artists like Phil Lesh Tribute, MJ Lenderman, and Stone Temple Pilots! A great way to support charity and spread joy through music! Let’s celebrate community spirit! #ChristmasJam2025 #GoodNews
Warren Haynes Details Christmas Jam 2025 Featuring Phil Lesh Tribute
JamBase
Like Comment