SRF/Ben's Dream was formed in celebration of Ben's 5th birthday. It is dedicated to promoting awareness and raising funds to support research aimed at finding a cure for all types of Sanfilippo Syndrome (MPS III), a rare and fatal genetic disorder. Benjamin Siedman had Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben and thousands of children afflicted like him have a life expectancy between 12 and 20 years. There is no treatment. There is no cure . . . Only hope. Right now Doctors can do little for Sanfilippo's symptoms and nothing to stop the catastrophic regression Ben faces. That is why we created the Sanfilippo Research Foundation. Our mission is to promote awareness and raise funds to support research aimed at finding a cure for all types of Sanfilippo Syndrome so Benjamin's friends can realize their dreams.