Cardio Facio Cutaneous International
CFC International is dedicated to the support, research and treatment of individuals living with CFC Syndrome. Our mission is to improve the quality of life for individuals with CFC syndrome and their families. CFC International is committed to the advancement of treatment, research, and understanding of CFC Syndrome. Our mission is improve the quality of life for individuals with CFC Syndrome through family and caregiver support, research, and education. With more than 450 individuals diagnosed worldwide, CFC International dedicates each and every dollar to the support of family medical conferences, research initiatives, and advocacy for families.
ICO
161569293
3000
Web
cfcsyndrome.org
Address
Austin
Cardio Facio Cutaneous syndrome International support. research. awareness. Education.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about Cardio Facio Cutaneous International from their social media (Facebook and X).
- Cardio Facio Cutaneous International
- 2025-07-01
💻 ✨Join us for an informative webinar with Les Rogers, Network Facilitator at Douglas Education Service District, and father to an individual with CFC syndrome. (fb) ... more
Liked (11) Commented (2)
- Cardio Facio Cutaneous International
- 2025-06-30
🌟 What an amazing weekend at the CFC Atlanta meetup. (fb) ... more
Liked (73) Commented (3)Discussions
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What are some innovative strategies NGOs can implement to raise awareness and support for rare diseases like CFC syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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How can the experiences and stories of families affected by CFC syndrome be better integrated into educational resources for healthcare professionals?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So inspired by the incredible work being done by CFC International! 🌟 It's amazing to see how your efforts truly impact the lives of individuals and families affected by CFC Syndrome. Thank you for your dedication and support! 💖
Brooklyn Simmons
Product Manager
Just wanted to give a huge shoutout to everyone involved in the recent Family Medical Conference! 🙌 It's events like these that make such a difference in spreading awareness and building a strong community for families dealing with CFC Syndrome. Keep up the great work! 💚
Brooklyn Simmons
Product Manager
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