Cardio Facio Cutaneous International

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CFC International is dedicated to the support, research and treatment of individuals living with CFC Syndrome. Our mission is to improve the quality of life for individuals with CFC syndrome and their families. CFC International is committed to the advancement of treatment, research, and understanding of CFC Syndrome. Our mission is improve the quality of life for individuals with CFC Syndrome through family and caregiver support, research, and education. With more than 450 individuals diagnosed worldwide, CFC International dedicates each and every dollar to the support of family medical conferences, research initiatives, and advocacy for families.

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Address: 16716 Cory Cactus Drive, AustinWeb: Sign in to see organisation websiteFacebook: cfcsyndromeEmployees: 3Volunteers: 20Revenue: 184530ICO: 161569293

Cardio Facio Cutaneous syndrome International support. research. awareness. Education.

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Cardio Facio Cutaneous International

We are getting ready over here for the BIG DAY. We are just 3 days away from the SOLD OUT Kinley Klassic and Kami Too. Golf Tournament on September 8th in Oklahoma City.

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Katherine

How can the experiences and stories of families affected by CFC syndrome be better integrated into educational resources for healthcare professionals?

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Cardio Facio Cutaneous International

🌟 What an incredible day at the Kinley Klassic and Kami Too Golf Tournament on September 8th. πŸŒοΈβ€β™‚οΈβ›³οΈ Together, you all raised an astounding $95,000 for CFC International. πŸ™ŒπŸŽ‰ A heartfelt thank you to all participants, sponsors, and volunteers who made this event a remarkable success.

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Lucy

So inspired by the incredible work being done by CFC International! 🌟 It's amazing to see how your efforts truly impact the lives of individuals and families affected by CFC Syndrome. Thank you for your dedication and support! πŸ’–

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Helen

What are some innovative strategies NGOs can implement to raise awareness and support for rare diseases like CFC syndrome?

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Paul

Just wanted to give a huge shoutout to everyone involved in the recent Family Medical Conference! πŸ™Œ It's events like these that make such a difference in spreading awareness and building a strong community for families dealing with CFC Syndrome. Keep up the great work! πŸ’š

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