THE NEUROMUSCULAR DISEASE FOUNDATION
NDF is a nonprofit whose mission is to raise awareness and encourage testing for HIBM and to find a cure for neuromuscular diseases, including HIBM. NDF is a non-profit committed to finding a treatment or cure for Hereditary Inclusion Body Myopathy. HIBM is a rare progressively debilitating neuromuscular disease that strikes patients in the prime of their lives. The Neuromuscular Disease Foundation's (NDF) mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding clinical research focused on treatments and a cure.
Founded
2006
6800
X (Twitter)
14
Address
Beverly Hills
Neuromuscular Disease Foundation | GNE Myopathy | HIBM We work to enhance the quality of life for those living with GNE Myopathy by funding critical research focused on treatments and a cure throughThe International Gene Therapy Development Program IGTDPand by advocacy education and outreach. We work to enhance the quality of life for those living with GNE Myopathy by funding critical research focused on treatments and a cure throughThe International Gene Therapy Development Program IGTDPand by advocacy education and outreach. Our Virtual Learning Library provides recordings of our GNEM Speaker Series events podcasts and webinars and is an invaluable resource where you can find answers to many of your questions about GNE Myopathy and the work of NDF. For Patients For Scientists Executive Summary of NDFs Research Efforts Our impact at a glance 4873 People Served Annually 5000 Individual Supporters 9M Funded in service of GNEM Science Programs 50 Countries 43 Associated Scientific Advisors Our Global Impact Tara USA California Amy USA Pennsylvania Al USA Minnesota Saskia Germany Rushab India Melissa USA Georgia Mona Lea England Valenee England Vaneesha France Roberta Turkey Leif Switzerland Okama Ivory Coast Sabeen Pakistan Suleyman Turkey Osamu Japan Suleyman Turkey Maya Israel Abdullah Saudi Arabia Kelly Taiwan Stephen Australia Latest News Happy Holidays.
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News about THE NEUROMUSCULAR DISEASE FOUNDATION from their social media (Facebook and X).
- THE NEUROMUSCULAR DISEASE FOUNDATION
- 2025-03-20
Wishing our Patient Advocate Kyeong a very happy birthday and a hopeful, healthy year ahead. (fb)
Liked (2) Commented (1)
- THE NEUROMUSCULAR DISEASE FOUNDATION
- 2025-03-20
Wishing our Patient Advocate Kyeong a very happy birthday and a hopeful, healthy year ahead. (fb)
Liked (2) Commented (1)Discussions
Odpovědí v diskuzi
1
1. How can we improve awareness and understanding of Hereditary Inclusion Body Myopathy (HIBM) among healthcare professionals and the general public?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What role do you think gene therapy could play in future treatments for GNE Myopathy, and how can NDF support this research effectively?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Incredible work, NDF! Thank you for making a difference in the lives of those affected by HIBM. Together, we can raise awareness and help find a cure! 💙🙏
Brooklyn Simmons
Product Manager
I’m so proud to support the NDF’s mission! Every donation counts and can lead us closer to crucial research breakthroughs for GNE Myopathy. Let’s keep pushing for more awareness! 🌍💪
Brooklyn Simmons
Product Manager
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