THE NEUROMUSCULAR DISEASE FOUNDATION
NDF is a nonprofit whose mission is to raise awareness and encourage testing for HIBM and to find a cure for neuromuscular diseases, including HIBM. NDF is a non-profit committed to finding a treatment or cure for Hereditary Inclusion Body Myopathy. HIBM is a rare progressively debilitating neuromuscular disease that strikes patients in the prime of their lives. The Neuromuscular Disease Foundation's (NDF) mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding clinical research focused on treatments and a cure.
Founded
2006
6800
X (Twitter)
14
Address
Beverly Hills
Neuromuscular Disease Foundation | GNE Myopathy | HIBM We work to enhance the quality of life for those living with GNE Myopathy by funding critical research focused on treatments and a cure throughThe International Gene Therapy Development Program IGTDPand by advocacy education and outreach. We work to enhance the quality of life for those living with GNE Myopathy by funding critical research focused on treatments and a cure throughThe International Gene Therapy Development Program IGTDPand by advocacy education and outreach. Our Virtual Learning Library provides recordings of our GNEM Speaker Series events podcasts and webinars and is an invaluable resource where you can find answers to many of your questions about GNE Myopathy and the work of NDF. For Patients For Scientists Executive Summary of NDFs Research Efforts Our impact at a glance 4873 People Served Annually 5000 Individual Supporters 9M Funded in service of GNEM Science Programs 50 Countries 43 Associated Scientific Advisors Our Global Impact Tara USA California Amy USA Pennsylvania Al USA Minnesota Saskia Germany Rushab India Melissa USA Georgia Mona Lea England Valenee England Vaneesha France Roberta Turkey Leif Switzerland Okama Ivory Coast Sabeen Pakistan Suleyman Turkey Osamu Japan Suleyman Turkey Maya Israel Abdullah Saudi Arabia Kelly Taiwan Stephen Australia Latest News Happy Holidays.
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Beverly Hills
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2025-10-23
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