Cushings Support and Research Foundation Incorporated

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Supporting patients in all ways; direct peer contact, trustworthy science-supported resources, community events, access to patient voice research opportunities. CSRF does not actively monitor or necessarily support user generated content here. Posts which are abusive or promotional will be removed. Posts do not constitute medical advice and are never a substitute for consultation with a qualified physician. CSRF’s mission is to provide information and support for patients and their families, to increase awareness in the medical community and the general, to support and collaborate on research, and to be a resource and referral for healthcare professionals. Our registry will create new datasets that explore quality of life issues that affect the disease course and life after remission. CSRF is very active in endocrine spaces, but is also building outreach beyond endocrinology because it’s vital to engage the physicians who see these patients regularly and have often known them for years, if not their whole life. CSRF believes that these doctors represent the future of better diagnosis and treatment, but they must feel confident and empowered to play a bigger role in screening.

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Address: 4155 Lawrenceville Highway #8130, PlymouthWeb: Sign in to see organisation websiteFacebook: CSRF.netX (Twitter): csrfnetRevenue: 160730ICO: 43271267

CSRF - Cushing's Support & Research Foundation - Cushing's Syndrome Resources All are welcome. Click here to sign up for one or more calls in 2025 all times in EST. A link will be emailed to you the day before. Upcoming calls Saturday March 15 1100am Wednesday April 16 700pm Saturday May 24 1100am Wednesday June 11 700pm Saturday July 19 1100am Ask questions and get support during our patientfree monthly calls.

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Catherine

So grateful for the amazing support CSRF provides! It's so important to connect with others who truly understand what we're going through. Let's keep building our community! 💙

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Cushings Support and Research Foundation Incorporated

This month's Caregiver Support Call is coming up. Click the link to join in next Sunday, September 21st at 7pm EST. Please note this is a change from the previously scheduled date of September 14, we apologize for the inconvenience.

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George

2. What are some effective strategies for raising awareness about Cushing's syndrome in our communities?

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Emil

Finally, a place where we can share our experiences and get the help we need. Looking forward to the upcoming calls! Together, we can make a difference in our journey with Cushing's! 🌟

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Catherine

1. How can we improve peer support systems for individuals navigating Cushing's syndrome?

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