Gist Support International
GIST Support International
200996949
2005
Doylestown, PA 18901 United States
gistsupport.org
GIST Support International
GIST Support International (GSI) is a non-profit, all-volunteer organization dedicated to providing education and support to individuals affected by gastrointestinal stromal tumors (GIST), as well as their families and friends. It falls under the category of organizations that focus on specific diseases, classified as a 501(c)(3) non-profit corporation.
Mission and Activities
GSI's primary mission is to promote ongoing research and provide resources to those dealing with GIST. It maintains an extensive website featuring clinical trial information, medical expert opinions, and a unique interactive wiki dedicated solely to GIST. The organization supports a global community, with members from around the world who share information and provide mutual support through active mailing lists.
Structure and Finance
GSI operates entirely through volunteer efforts and does not pay any compensation to its members or volunteers. Financially, GSI relies on contributions to continue its educational activities and development of patient education programs. All contributions are used for the intended purposes as designated by donors. The organization's general operating budget is funded by non-specific contributions.
Programs and Resources
- Clinical Trial Information: GSI provides up-to-date information on clinical trials related to GIST.
- Medical Expert Opinions: Through the "Ask the Professional" series, GSI offers insights from medical experts in the field.
- Pediatric GIST Support: GSI has a dedicated section for pediatric GIST patients and their families, including a listserv specifically for this demographic.
- Global Community Support: The organization facilitates global communication among GIST patients and their supporters.
GSI's work aligns with broader efforts to enhance awareness and research into GIST, contributing to the search for a cure for this rare form of cancer.
[1] https://ccr.cancer.gov/pediatric-oncology-branch/gist-clinic/links [2] https://rarediseases.org/organizations/gist-support-international/ [3] https://projects.propublica.org/nonprofits/organizations/200996949 [4] https://www.gistsupport.org/about-gist-support-international/organization/ [5] https://liferaftgroup.org
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About the organization
- G80 -
Join Our Community Patients and caregivers can interact and feel comfortable sharing thoughts ideas and experiences while working through the emotional rollercoaster of living with cancer. Become Your Own Best Advocate Physicians researchers and other experts answer questions in order to further the education and support of GIST patients and their caregivers family and friends. Give Today Support the quest for a cure for Gastrointestinal Stromal Tumor and help us continue and expand our services to the GIST community. NCCN Guidelines for Patients GIST What is GIST.
Specifically Named Diseases
