Don’t Miss This Important Update from Wave Life Sciences If you weren’t able to join us live, we invite you to watch the recording of our recent webinar featuring the 48-week data update from Wave Life Sciences’ FORWARD-53 study. This insightful session offers a closer look at exon skipping therapy for Duchenne muscular dystrophy, including perspectives from Wave’s clinical and scientific leadership. 👉 Watch the full webinar here: https://cureduchenne.org/general/wave-life-sciences-update-on-48-week-data-from-forward-53-study/ Whether you're a caregiver, clinician, or member of the Duchenne community, this is a valuable opportunity to hear directly from the experts and stay informed on progress in exon 53–skipping therapies. #exonskipping #DMD #CureDuchenne #DUCHENNE #DuchenneCommunity #webinar #FDA #wavelifesciences @followers (fb)

FUTURES Keynote Announcement! All The Things We Didn’t See Robert and Trude Steen, parents of Mats Steen, will deliver the keynote address. Mats lived with Duchenne muscular dystrophy and inspired the award-winning Netflix documentary The Remarkable Life of Ibelin, which premiered at Sundance in 2024. His story—and the film and campaign that followed—sparked global awareness of Duchenne. The Steens will share how Mats built a deep community through gaming, becoming a trusted friend and advisor to many, and how his digital life revealed a rich network of connections and meaning his family had never imagined. Make sure you are registered for FUTURES to hear them share their story! https://web.cvent.com/event/3d756dbc-811a-4700-954e-ef31538e1a21/summary #CureDuchenne #TheRemarkableLifeofIbelin #Futures2025 #DMD #Duchenne #DuchenneCommunity #FuturesSanAntonio (fb)