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208423943
2007
Durham, NC 27702-2127 USA
chordoma.org
ChordomaFDN
chordomafoundation
Podobné organizace
PANCREATIC CANCER ACTION NETWORK INC |
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Buck Cancer Foundation |
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Jsj Strong Chordoma Incorporated |
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Pancreatic Cancer Connector Foundation |
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Lymphoma Research Foundation |
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PANCREATIC CANCER ACTION |
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CHORDOMA UK |
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MISSION REMISSION |
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THE PATIENT CANCER SUPPORT GROUP |
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News

We're excited to announce our 2025 webinar lineup! Topics and dates include: 🍇 Nutrition (June 11): Practical tips on how nutrition can help manage side effects, and maintain your strength, energy, and wellbeing through every stage of the chordoma journey. 🧻 Bladder and bowel challenges for sacral patients (August 28): Advice from a medical expert on how to handle common urinary and bowel health issues. 🗣️ Advocating for yourself (November 5): Guidance on how to confidently speak up about your needs, ensuring your medical care works for you. Register here 👉 chordoma.org/events Hope to see you there! (fb)

📢 NEW: Shape the future of chordoma treatment! We're inviting chordoma patients and caregivers to take our 15-minute, confidential survey to share your thoughts about clinical trials. Survey here 👉 bit.ly/ChordomaSurvey Whether or not you’ve participated in a clinical trial before, your perspective will help ensure that future trials are designed with your needs and priorities in mind, so we can bring new and better treatments to you, faster. Thanks for being part of a community that's moving research forward — together! 📸: Julie E., chordoma clinical trial participant (fb)

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About the organization
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Improving lives. Accelerating cures. One in a million but not alone The commitment and participation of everyone affected by chordoma is fueling progress thats virtually unprecedented for a rare cancer. With your help dramatically better treatments are possible and they could be available soon.
Cancer Research Alliance/Advocacy Organizations Alliance/Advocacy Organizations