Coalition For Usher Syndrome Research
Usher Syndrome Coalition
264560897
2009
Westford, MA 01886
usher-syndrome.org
UsherSyndromeCoalition
4232977
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News
From Genes to Traits: Understanding Usher Syndrome Part 5: You Are Not Alone Usher syndrome is rare, but no one should go through it feeling invisible. Whether you’re living with USH, supporting a loved one, or learning for the first time, thank you for being part of this series. Behind every symptom is a whole person. Behind every diagnosis is a family looking for answers. We hope this series helped connect the science with real experiences and reminded you that you're not alone. ID: 1- From Genes to Traits: You Are Not Alone. "Science Education" is in the upper right corner, while the Rare Genes campaign logo and Usher Syndrome Coalition is in the bottom left corner. 2- Usher syndrome: Rare, Not Invisible. Behind every symptom is a whole person. Behind every diagnosis is a family looking for answers. Illustration of a group of a family unit. #UsherSyndrome #RareDisease #Genetics #HearingLoss #Accessibility #DisabilityAwareness (fb)
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About the organization
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Speed the search for treatments The largest international Usher syndrome database in the world Announcing new partnership to support clinical trial enrollment for a potential therapy for USH2Amediated retinitis pigmentosa What is Usher Syndrome. Usher syndromeis the most common genetic cause of combined deafness and blindness. Usher syndrome USH is a rare inherited condition passing from parents to children that impacts three major senses in the body vision hearing and balance. There are three clinical types of Usher syndrome Type 1 usually causes profound deafness at birth vestibular balance dysfunction and progressive vision loss due to retinitis pigmentosa Type 2 usually causes moderate to severe hearing loss at birth and progressive vision loss Type 3 usually causes later onset progressive hearing loss and progressive vision loss.
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