Coalition For Usher Syndrome Research
Usher Syndrome Coalition: Connecting the global Usher community.
Founded
2009
5910
Web
usher-syndrome.org
Traffic
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Usher Syndrome Coalition Speed the search for treatments The largest international Usher syndrome database in the world Announcing new partnership to support clinical trial enrollment for a potential therapy for USH2Amediated retinitis pigmentosa What is Usher Syndrome. Usher syndromeis the most common genetic cause of combined deafness and blindness. Usher syndrome USH is a rare inherited condition passing from parents to children that impacts three major senses in the body vision hearing and balance. There are three clinical types of Usher syndrome Type 1 usually causes profound deafness at birth vestibular balance dysfunction and progressive vision loss due to retinitis pigmentosa Type 2 usually causes moderate to severe hearing loss at birth and progressive vision loss Type 3 usually causes later onset progressive hearing loss and progressive vision loss.
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From Social media
News about Coalition For Usher Syndrome Research from their social media (Facebook and X).
- Coalition For Usher Syndrome Research
- 2025-05-30
From Genes to Traits: Understanding Usher Syndrome Part 5: You Are Not Alone Usher syndrome is rare, but no one should go through it feeling invisible. (fb) ... more
Liked (21) Commented (1)Discussions
Odpovědí v diskuzi
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1. What role can advocacy play in increasing awareness and funding for research into treatments for Usher Syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can the Usher Syndrome Coalition better support families affected by this condition through community-building initiatives and resources?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 So grateful for the amazing work the Usher Syndrome Coalition is doing to connect families and support research! Together, we can make a difference in the lives of those affected by Usher syndrome. 💙 #USHCommunity #HopeForTomorrow
Brooklyn Simmons
Product Manager
💪 Excited to hear about the new partnership for clinical trial enrollment! Every step forward brings us closer to potential treatments. Let's keep supporting each other in this journey! 🌍✨ #CureUSH #CommunityStrength
Brooklyn Simmons
Product Manager
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