Coalition For Usher Syndrome Research
Usher Syndrome Coalition: Connecting the global Usher community.
Founded
2009
5910
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Usher Syndrome Coalition Speed the search for treatments The largest international Usher syndrome database in the world Announcing new partnership to support clinical trial enrollment for a potential therapy for USH2Amediated retinitis pigmentosa What is Usher Syndrome. Usher syndromeis the most common genetic cause of combined deafness and blindness. Usher syndrome USH is a rare inherited condition passing from parents to children that impacts three major senses in the body vision hearing and balance. There are three clinical types of Usher syndrome Type 1 usually causes profound deafness at birth vestibular balance dysfunction and progressive vision loss due to retinitis pigmentosa Type 2 usually causes moderate to severe hearing loss at birth and progressive vision loss Type 3 usually causes later onset progressive hearing loss and progressive vision loss.
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Coalition For Usher Syndrome Research
From Genes to Traits: Understanding Usher Syndrome Part 5: You Are Not Alone Usher syndrome is rare, but no one should go through it feeling invisible. Whether you’re living with USH, supporting a loved one, or learning for the first time, thank you for being part of this series. Behind every symptom is a whole person.
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A registered charity based in the U.
Cure Usher is a registered charity, number 1181293, in England and Wales.
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