GLUT1 DEFICIENCY FOUNDATION INC

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2011

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OWINGSVILLE

Address: PO BOX 737, OWINGSVILLEWeb: Sign in to see organisation websiteEmployees: 3Volunteers: 10Revenue: 340216ICO: 452190535

Glut1 Deficiency Foundation Building a brighter future Bringing help and hope to the Glut1 Deficiency community as we work together to improve lives through awareness education advocacy and research Shining a light on Glut1 Deficiency Glucose Transporter Protein Type 1 Deficiency Syndrome Glut1 Deficiency is a rare genetic condition that impairs brain metabolism. Glucose isnt transported properly across the blood brain barrier and into the brain preventing it from growing developing and functioning the way it should. Together were making progress. At the Glut1 Deficiency Foundation we dont just support families and provide resources.

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Margaret

- How can we better utilize patient and family experiences to inform research priorities and advocacy efforts for rare genetic conditions like Glut1 Deficiency?

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William

- What innovative approaches can NGOs like the Glut1 Deficiency Foundation take to increase awareness and understanding of Glut1 Deficiency within the medical community and among the public?

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Pauline

Keep shining a light on Glut1 Deficiency! Every effort counts, and the work you're doing truly makes a difference in the lives of families and patients. Proud to support this important cause! ๐ŸŒŸ๐Ÿ™

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Peter

So inspiring to see the dedication and progress being made for the Glut1 Deficiency community! Together, we can bring hope and awareness to those impacted by this rare condition. ๐Ÿ’™โœจ

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