NORTH CAROLINA RARE DISEASE

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814269135

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DURHAM

Address: 501 FINSBURY ST APT 304, DURHAMWeb: Sign in to see organisation websiteRevenue: 170927ICO: 814269135

Rare Disease Innovations Institute Rare Disease Innovations Institute Our Mission RDII is a global nonprofit focused on educating engaging and equipping the rare disease community. Through policy tools and data we achieve a higher quality of life accelerating diagnosis and enabling access and treatment Recent Updates Letter from the President on the Prescription Drug Affordability Board Women in Government NBS webinar recording Seattle Rare Disease Fair Summit 2022 Rare Disease Day Virtual Event 2022 Recordings Rare Disease Day Blog post from our President Tara Britt Rare Disease Day 2022 A TwoDay Golf Experience for Champions for a Cure Tournament North Carolina becomes 4th state in 2021 to sign newborn screening legilation Wellintended measure will throttle pharma innovation World Sickle Cell Day 2021 Posts navigation . .

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Pauline

1. How can we better engage the community to raise awareness and support for rare diseases, especially in light of recent legislative changes in North Carolina?

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Alan

👏 Excited to see the impact of the newborn screening legislation in North Carolina! Every step toward better diagnosis and treatment is a step toward hope for families battling rare diseases. Keep up the amazing work! #ChampionForACure

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Stella

2. What innovative policy approaches can the Rare Disease Innovations Institute advocate for to ensure affordable access to treatments for patients with rare diseases?

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Nicole

❤️ Thank you, Rare Disease Innovations Institute, for your dedication to improving the lives of those affected by rare diseases. Your efforts in education and advocacy are truly making a difference! #RareDiseaseAwareness

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DURHAM

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