Myotonic Dystrophy Foundation
The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure. We envision a world with treatments and a cure for myotonic dystrophy (DM). We envision a world with treatments and a cure for myotonic dystrophy. The mission of the Myotonic Dystrophy Foundation is Community, Care, and a Cure. - We support and connect the myotonic dystrophy community. - We provide resources and advocate for care. - We accelerate research toward treatments and a cure.
Founded
2006
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Myotonic Dystrophy Foundation Toolkit The Latest MDF is excited to introduce Understanding Myotonic Dystrophy a new series of short educational animations designed to educate people living with myotonic dystrophy DM and their healthcare providers. Our second animation Understanding Myotonic Dystrophy Inheritance of Myotonic Dystrophy Type 1 DM1 explains how DM1 is passed down from generation to generation and highlights the importance of genetic testing. Hot off the presses a large study examining healthcare costs and utilization for patients with myotonic dystrophy highlighted high clinical and economic burden as well as stresses the importance of improving care and lowering the healthcare costs. Specifically the study showed that DM patients Drawn to RNA biology Dr.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about Myotonic Dystrophy Foundation from their social media (Facebook and X).
- Myotonic Dystrophy Foundation
- 2025-06-18
π» Raise a glass for #myotonicDystrophy this Sunday. (tw) ... more
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- Myotonic Dystrophy Foundation
- 2025-06-17
π#MyotonicDystrophy In Motion athletic gear is back, available through July. (tw) ... more
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OdpovΔdΓ v diskuzi
1
1. How can we enhance community support and resources for families affected by myotonic dystrophy, particularly in terms of education and awareness about genetic testing and inheritance patterns?
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Brooklyn Simmons
2 days ago
OdpovΔdΓ v diskuzi
1
2. What strategies can the Myotonic Dystrophy Foundation implement to advocate for policy changes that address the high healthcare costs faced by patients with DM and improve access to necessary treatments?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
So excited to see the new educational animations from MDF! Knowledge is power, and this series will surely help many understand Myotonic Dystrophy better. π #MyotonicDystrophy #EducationMatters
Brooklyn Simmons
Product Manager
Incredible work being done by the Myotonic Dystrophy Foundation! Together, we can make strides towards better care and ultimately a cure. Keep pushing the boundaries of research! π #CommunityCareCure
Brooklyn Simmons
Product Manager
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