Myotonic Dystrophy Foundation
The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure. We envision a world with treatments and a cure for myotonic dystrophy (DM). We envision a world with treatments and a cure for myotonic dystrophy. The mission of the Myotonic Dystrophy Foundation is Community, Care, and a Cure. - We support and connect the myotonic dystrophy community. - We provide resources and advocate for care. - We accelerate research toward treatments and a cure.
Founded
2006
7000
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1529
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1607462
Myotonic Dystrophy Foundation Toolkit The Latest MDF is excited to introduce Understanding Myotonic Dystrophy a new series of short educational animations designed to educate people living with myotonic dystrophy DM and their healthcare providers. Our second animation Understanding Myotonic Dystrophy Inheritance of Myotonic Dystrophy Type 1 DM1 explains how DM1 is passed down from generation to generation and highlights the importance of genetic testing. Hot off the presses a large study examining healthcare costs and utilization for patients with myotonic dystrophy highlighted high clinical and economic burden as well as stresses the importance of improving care and lowering the healthcare costs. Specifically the study showed that DM patients Drawn to RNA biology Dr.
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