Myotonic Dystrophy Foundation
Myotonic Dystrophy Foundation
205014628
2006
Oakland, CA 94612 USA
myotonic.org
myotonicstrong
MyotonicStrong
1256616
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News
📢 Are you living with #myotonicDystrophy or caring for someone who is? 💚 New treatments are on the horizon—but access isn’t guaranteed. Help shape DM healthcare and insurance systems by sharing your real-world experiences in the DM INSIGHT study (Investigating Needs, Support, Gaps, and Healthcare Trends in Myotonic Dystrophy). 📝 Make your voice heard—take the survey today: 🔗 https://www.myotonic.org/insight (fb)
📢 Let's get moving this July! 💚 Join MDF for #MyotonicDystrophy #InMotion Awareness Month! 🏋️♀️ Register once to attend weekly #MovementMondays 💪 Virtual Happy Hours 🤝 and a bonus Stump the Doctor 🩺 session. 🔗 Sign up: https://www.myotonic.org/in-motion-2025 (fb)
Poslední diskuze
Nearby
10
90
4.5
Oakland
About the organization
- G50, H50, T30 -
Toolkit The Latest MDF is excited to introduce Understanding Myotonic Dystrophy a new series of short educational animations designed to educate people living with myotonic dystrophy DM and their healthcare providers. Our second animation Understanding Myotonic Dystrophy Inheritance of Myotonic Dystrophy Type 1 DM1 explains how DM1 is passed down from generation to generation and highlights the importance of genetic testing. Hot off the presses a large study examining healthcare costs and utilization for patients with myotonic dystrophy highlighted high clinical and economic burden as well as stresses the importance of improving care and lowering the healthcare costs. Specifically the study showed that DM patients Drawn to RNA biology Dr.
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