Myotonic Dystrophy Foundation

Myotonic Dystrophy Foundation

The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure. We envision a world with treatments and a cure for myotonic dystrophy (DM).
205014628
EIN
2006
Founded
Oakland, CA 94612 USA
Address
myotonic.org
Web
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Facebook (7000)
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Myotonic Dystrophy Foundation
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80 - 100
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4.5
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Oakland
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About the organization

- G50, H50, T30 -

Toolkit The Latest MDF is excited to introduce Understanding Myotonic Dystrophy a new series of short educational animations designed to educate people living with myotonic dystrophy DM and their healthcare providers. Our second animation Understanding Myotonic Dystrophy Inheritance of Myotonic Dystrophy Type 1 DM1 explains how DM1 is passed down from generation to generation and highlights the importance of genetic testing. Hot off the presses a large study examining healthcare costs and utilization for patients with myotonic dystrophy highlighted high clinical and economic burden as well as stresses the importance of improving care and lowering the healthcare costs. Specifically the study showed that DM patients Drawn to RNA biology Dr.

Nerve, Muscle, and Bone Diseases Nerve, Muscle, and Bone Research Public Foundations
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