AMERICAN PORPHYRIA FOUNDATION
Official page, American Porphyria Foundation. Formed in 1982 by Desiree Lyon.
Founded
2000
4376
Web
porphyriafoundation.org
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Home Donate Join APF Contact Dedicated to our Mission Supporting individuals and families impacted by Porphyria Learn More Comprehensive Education for the porphyria and healthcare community Learn More Remember Research . is the key to your cure. Learn More Empowering Patients SUPPORT Add your voice to the porphyria community. GET INVOLVED Empowering Patients SUPPORT Add your voice to the porphyria community.
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From Social media
News about AMERICAN PORPHYRIA FOUNDATION from their social media (Facebook and X).
- AMERICAN PORPHYRIA FOUNDATION
- 2025-06-23
📣 IMPORTANT ANNOUNCEMENT 📣 The American Porphyria Foundation (APF) is bringing back Patient Support Meetings nationwide. (fb) ... more
Liked (6) Commented (2)
- AMERICAN PORPHYRIA FOUNDATION
- 2025-06-23
Monday Motivation 💜 💜 . . #motivationalmonday #mondaymotivation #americanporphyriafoundation #APF #StrongerTogether. (fb) ... more
Liked (11) Commented (2)Discussions
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What are some effective strategies that NGOs can adopt to raise awareness about lesser-known genetic disorders like Porphyria in the general public?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can the American Porphyria Foundation better engage with healthcare professionals to improve the diagnosis and treatment of patients with Porphyria?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the amazing work the American Porphyria Foundation does! Thank you for supporting families and raising awareness about this important health issue. 💜
Brooklyn Simmons
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Every donation counts! Let's come together as a community to empower those affected by Porphyria and work towards better research and treatments. Join me in supporting this great cause! 🌟
Brooklyn Simmons
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