BFLS Incorporated
Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS�
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874506982
579
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Bakersfield
BFLS Inc Born Fierce. Living Strong. BFLS Incorporated A BrjesonForssmanLehmann Syndrome 501c3 Nonprofit Less than 100 cases in the world Thats what the geneticist said and then gave a research paper from the 1960s about BFLS and sent on our way. We then started the journey to research more to understand how to best help support our 4 month old Asher who had just been given the diagnosis of BFLS after months of searching for a diagnosis had come to an end following comprehensive genetic testing.
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Fund Raising and/or Fund Distribution Category
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Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS�.
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Bakersfield
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Vision: "To illuminate the minds and hearts of learners everywhere.
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Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS�.
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Reform synagogue in Bakersfield, CA dedicated to community-building: A community in which Jewish ideals are made real and education is the key to a lifetime of Jewish fulfillment.
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Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS�.
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