BFLS Incorporated
Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS�
ICO
874506982
579
Web
bflsinc.com
Address
Bakersfield
BFLS Inc Born Fierce. Living Strong. BFLS Incorporated A BrjesonForssmanLehmann Syndrome 501c3 Nonprofit Less than 100 cases in the world Thats what the geneticist said and then gave a research paper from the 1960s about BFLS and sent on our way. We then started the journey to research more to understand how to best help support our 4 month old Asher who had just been given the diagnosis of BFLS after months of searching for a diagnosis had come to an end following comprehensive genetic testing.
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Discussions
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1. What strategies can NGOs like BFLS Incorporated implement to effectively raise awareness about rare genetic disorders in the broader community?
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Brooklyn Simmons
2 days ago
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2. How can we enhance support for families affected by Börjeson-Forssman-Lehman Syndrome and ensure they have access to necessary resources and information?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
Thank you for shedding light on BFLS! 💙 Every bit of awareness helps bring us closer to a cure for our brave little fighters! #BornFierceLivingStrong
Brooklyn Simmons
Product Manager
Let’s rally together to support families like Asher's! 🌟 Your contributions to BFLS Inc can make a real difference in the lives of those affected by this rare disorder. #BFLSAwareness
Brooklyn Simmons
Product Manager
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