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RUMFORD, RI 029161319
beyondthediagnosis.org
BeyondTheDx
Podobné organizace
U R Our Hope |
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Ellie White Foundation for Rare Genetic Disorders Inc |
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Forgotten Diseases Research Foundation |
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Prader-Willi Syndrome Association | USA |
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Rare Genes Movement |
Podobné organizace global
CONGENITAL ANAEMIA NETWORK |
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FAHR BEYOND |
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FORGOTTEN PATIENTS, OVERLOOKED DISEASES |
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THE MAX WARD FOUNDATION |
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TANGO2UK |
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News

May is EDS Awareness Month!! My EDSer went from two years bedridden to brain surgery to a PERFECT score on the #sat #disability does not mean INABILITY! So proud of you, Hana!! #ehlersdanlossyndrome #eds #pots #potssyndrome #mastcell #mastcellactivationsyndrome #chronicillness #chronicpain (fb)

Our hearts are with Max's family during this unimaginable loss. Max's portrait brought his spirit and story to life in a way that touched countless people. ❤️ (fb)

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About the organization
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Every Child Is a Masterpiece Home About Exhibitions News Forms Portraits Patronage Contact More Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare promote inclusivity and raise awareness for children living with lifealtering diseases. Fabry DiseaseArtist Jota Leal Primary Immunodeficiency DiseaseArtist Vivian McNeeley April 26thInfantile Neuroaxonal DystrophyArtist Jota Leal Fabry DiseaseArtist Jota Leal The following conditions have awareness days in March Trisomy 5 ADCY5 Landau Kleffner Syndrome It39s not what you look at that matters. It39s what you see. Henry David Thoreau All funding to support our Beyond the Diagnosis art exhibit comes fromcorporate or private patrons.