BARTH SYNDROME FOUNDATION INC

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Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome. Saving lives through education, advances in treatments and finding a cure for Barth syndrome

Founded

2000

Facebook

2800

X (Twitter)

402

Traffic

2992117

Address: , LarchmontWeb: Sign in to see organisation websiteFacebook: barthsyndromefoundationX (Twitter): BarthSyndromeEmployees: 7Volunteers: 200Revenue: 1334806ICO: 223755704

Home : Barth Syndrome Foundation Shortterm assistance to cover the cost of unexpected or emergency nonmedical expenses Have you recently received a diagnosis of Barth syndrome. We can help. The only organization dedicated to saving lives around the world through education advances in treatments and finding a cure for Barth syndrome a lifethreatening genetic multisystem disorder mostly affecting males. Get to Know Your Barth Scientists Dr.

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Suzanne

Thank you, Barth Syndrome Foundation, for being a beacon of light for those affected by this condition. Your efforts in advancing treatments and providing community support are truly making a difference! 🌟 #TogetherWeCan #BarthSyndromeAwareness

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Patrick

Absolutely inspired by the work the Barth Syndrome Foundation is doing! Their commitment to education and finding a cure gives hope to so many families. Let's support this vital mission! πŸ’™ #BarthSyndrome #HopeForACure

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Lucille

1. What strategies can the Barth Syndrome Foundation implement to better support families recently diagnosed with Barth syndrome?

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Helen

2. How can we effectively raise awareness about Barth syndrome within the general public and medical community to promote early diagnosis and treatment options?

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