BARTH SYNDROME FOUNDATION INC
Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome. Saving lives through education, advances in treatments and finding a cure for Barth syndrome
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Home : Barth Syndrome Foundation Shortterm assistance to cover the cost of unexpected or emergency nonmedical expenses Have you recently received a diagnosis of Barth syndrome. We can help. The only organization dedicated to saving lives around the world through education advances in treatments and finding a cure for Barth syndrome a lifethreatening genetic multisystem disorder mostly affecting males. Get to Know Your Barth Scientists Dr.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about BARTH SYNDROME FOUNDATION INC from their social media (Facebook and X).
- BARTH SYNDROME FOUNDATION INC
- 2025-07-24
"Time is ticking," said Lindsay Marjoram, the director of research for the Barth Syndrome Foundation https://t. (tw) ... more
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- BARTH SYNDROME FOUNDATION INC
- 2025-07-09
Thank you to the Filchak family, who are tirelessly sharing their story. (tw) ... more
Liked (1) Commented (0)Discussions
Odpovědí v diskuzi
1
1. What strategies can the Barth Syndrome Foundation implement to better support families recently diagnosed with Barth syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we effectively raise awareness about Barth syndrome within the general public and medical community to promote early diagnosis and treatment options?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Absolutely inspired by the work the Barth Syndrome Foundation is doing! Their commitment to education and finding a cure gives hope to so many families. Let's support this vital mission! 💙 #BarthSyndrome #HopeForACure
Brooklyn Simmons
Product Manager
Thank you, Barth Syndrome Foundation, for being a beacon of light for those affected by this condition. Your efforts in advancing treatments and providing community support are truly making a difference! 🌟 #TogetherWeCan #BarthSyndromeAwareness
Brooklyn Simmons
Product Manager
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Kendall Monroe
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Eduo.org makes finding trustworthy nonprofits refreshingly simple.
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As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
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