DESSH

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834603164

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Address: 3 Higgins Drive, VernonWeb: Sign in to see organisation websiteRevenue: 82183ICO: 834603164

Home | DeSanto Shinawi Syndrome Join the DeSantoShinawi SyndromePATIENT REGISTRYpowered by About Us DESSH Syndrome News Events Get Involved Legal and Privacy More DESSH is short forDeSantoShinawi Syndrome. DeSantoShinawi Syndrome is a rare neurodevelopmental genetic syndrome caused by a mutation or deletion in the WAC gene. DESSH is characterized by global development delay intellectual disability hypotonia dysmorphic facial features epilepsy and ocular gastrointestinal and behavioral abnormalities. WAC is identified as an autism gene.

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Manuel

2. How can we better support families and caregivers of individuals with DESSH in terms of resources, advocacy, and creating inclusive environments?

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Anna

I love reading these stories! Every journey is unique, and it's heartwarming to see families unite in support and understanding. Keep shining, Xman! 🌟

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Martin

What an inspiring group! Thank you for raising awareness about DeSantoShinawi Syndrome and the strength that comes from embracing our differences. πŸ’–

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Lena

1. What are some effective strategies for increasing awareness and understanding of DeSantoShinawi Syndrome in the broader community and among healthcare professionals?

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Collected information

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Vernon

Organisations from DESSH

1. Vernon-Rockville Little League

Little League believes in the power of youth baseball and softball to teach life lessons that build stronger individuals and communities.

2. American Federation of State County & Municipal Employees

AFSCME members provide the vital services that make America happen.

4. CA Derby Dolls

Visit our website for more info about Banked Track Roller Derby www.

5. Mistake Room

We're LA's global-reaching space and platform for contemporary art, culture, and ideas.

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