Founded
2019
Web
adldcenter.com
Address
TROY
ADLD Center - Supporting research and patients with ADLD. The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy ADLD and developing a network of clinicians researchers patients and their caregiversadvocates in order to raise funds as we move forward towards finding a cure. We facilitate basic and translational research in order to understand ADLD better and find effective treatments We are creating a network of physicians and health professionals who have relevant expertise and can provide effective care Patients We aim to grow as a community and be an information resource for patients and their families around all things ADLD Subscribe for news and updates. Support us Download the ADLD HANDBOOK Top Stories . .
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Our mission is to improve health outcomes for individuals with ALD by empowering patients/caregivers, raising awareness, and accelerating the translation of scientific breakthroughs into better clinical care.
Awareness.
Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP.
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Category Birth Defects, Genetic Diseases Research
Další Birth Defects, Genetic Diseases ResearchDiscussions
Odpovědí v diskuzi
1
What strategies can we implement to effectively raise awareness about Autosomal Dominant Leukodystrophy (ADLD) within both the medical community and the general public?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we enhance collaboration among researchers, clinicians, and patients to expedite the process of finding effective treatments for ADLD?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 It's amazing to see the ADLD Center bringing together so many passionate advocates, clinicians, and researchers! Together, we can raise awareness and work towards finding a cure for ADLD. Let's spread the word! 💙 #ADLD #HopeForACure
Brooklyn Simmons
Product Manager
🙏 I'm so thankful for the ADLD Center's dedication to supporting patients and their families. Knowledge is power, and this resource is invaluable for those affected by ADLD. Let's join forces and make a difference! 🌈 #ADLDCommunity #SupportAndAwareness
Brooklyn Simmons
Product Manager
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