
Home | Amyloidosis Foundation
200291856
2003
Clarkston, MI 48346 USA
amyloidosis.org
Amyloidosisfdn
amyloidosisfdn
1517477
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News

The Amyloidosis fund is now Open and accepting new grant applications. Please note that funding is limited and grants are awarded on a first-come, first-served basis for eligible patients. To apply or verify eligibility for a grant, log on to your HealthWell portal account or call our hotline at (800) 675-8416, Monday thru Friday 9:00 a.m. to 5:00 p.m. EST. To enroll for the first time through your patient portal , please click on the link below. https://urldefense.proofpoint.com/v2/url?u=https-3A__healthwellfoundation.my.salesforce-2Dsites.com_guests_switchProfile-3Fswitchcontact-3D0034w00003cuFYeAAM&d=DwIFAg&c=euGZstcaTDllvimEN8b7jXrwqOf-v5A_CdpgnVfiiMM&r=EZFndU88hBl1i2vxOdz1Tuz8tcy4tGzUz5LoPmX1Mdc&m=EEjtV1_FBVYweSgunIiZl-75bnYQw2cFq8JwYkB8STBAzKxWsmCtd-LawBRKRPj_&s=nkDA73LCJOCoy_W7dG2QoQ7REvbbxvSA8qEy90gefHI&e= If you are a provider or pharmacy with a portal account, please log into your portal to enroll your patients. If you do not have a portal account, please click on the link below to create a portal account. Provider Portal: https://urldefense.proofpoint.com/v2/url?u=https-3A__healthwellfoundation.my.salesforce-2Dsites.com_providers&d=DwIFAg&c=euGZstcaTDllvimEN8b7jXrwqOf-v5A_CdpgnVfiiMM&r=EZFndU88hBl1i2vxOdz1Tuz8tcy4tGzUz5LoPmX1Mdc&m=EEjtV1_FBVYweSgunIiZl-75bnYQw2cFq8JwYkB8STBAzKxWsmCtd-LawBRKRPj_&s=QP1Pr4o8XMJsivovr8k1s_VCnYnY-MgP4mDXKeiIytE&e= Pharmacy Portal: https://urldefense.proofpoint.com/v2/url?u=https-3A__healthwellfoundation.my.salesforce-2Dsites.com_pharmacies&d=DwIFAg&c=euGZstcaTDllvimEN8b7jXrwqOf-v5A_CdpgnVfiiMM&r=EZFndU88hBl1i2vxOdz1Tuz8tcy4tGzUz5LoPmX1Mdc&m=EEjtV1_FBVYweSgunIiZl-75bnYQw2cFq8JwYkB8STBAzKxWsmCtd-LawBRKRPj_&s=2qja__WNpW_zCw-YnzOWcLuFPoMI87N4ineIy3PMQWk&e= If you currently have a grant with HealthWell, your grant will remain active for the entire 12 month grant cycle or until you have exhausted your allocated grant amount, whichever comes first. If you would like to unsubscribe from fund alerts or manage your alert settings, please sign into your portal account at https://urldefense.proofpoint.com/v2/url?u=https-3A__healthwellfoundation.my.salesforce-2Dsites.com_guests_loginredirect-3Fid-3D0034w00003cuFYeAAM&d=DwIFAg&c=euGZstcaTDllvimEN8b7jXrwqOf-v5A_CdpgnVfiiMM&r=EZFndU88hBl1i2vxOdz1Tuz8tcy4tGzUz5LoPmX1Mdc&m=EEjtV1_FBVYweSgunIiZl-75bnYQw2cFq8JwYkB8STBAzKxWsmCtd-LawBRKRPj_&s=ZQbyUYWxkXg7olkA69fEGfHv-9qev3IVL1f3sCesmXE&e= https://urldefense.proofpoint.com/v2/url?u=https-3A__www.healthwellfoundation.org_&d=DwIFAg&c=euGZstcaTDllvimEN8b7jXrwqOf-v5A_CdpgnVfiiMM&r=EZFndU88hBl1i2vxOdz1Tuz8tcy4tGzUz5LoPmX1Mdc&m=EEjtV1_FBVYweSgunIiZl-75bnYQw2cFq8JwYkB8STBAzKxWsmCtd-LawBRKRPj_&s=gKaHntTCPtESl2p7HKq0WYQ8KZ3JoSW7JFESXkioEgo&e= (fb)

ZS Associates (an independent market research agency) and LaGrippe Research (the recruitment agency), is conducting a research initiative focused on understanding the experience of people undergoing treatment for ATTR amyloidosis. Their goal is to learn directly from patients to better understand their journeys, including how they navigate treatment decisions, what kind of support they receive, and how treatment impacts their quality of life. Below is a brief overview of the research project: What are they hoping to learn? About patients’ experiences with newer treatments for ATTR amyloidosis, with a focus on the logistical and emotional challenges involved in initiating therapy, including considerations around affordability, access, and the overall treatment experience Who are they hoping to speak to? ATTR-PN (ATTR polyneuropathy) and ATTR-CM (ATTR cardiomyopathy) patients who have started on a new treatment in the last 12 months When is the research being conducted? Early June – Early July How long will the interviews be? These will be 60-minute online interviews Is this research being compensated? Yes, participants will be promptly compensated for their time If anyone is interested in participating or learning more, please feel free to contact the LaGrippe Research recruiting agency directly at Info@lagripperesearch.com or Tory@lagripperesearch.com. (fb)

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Mobile Menu Main navigation Search Secondary Menu 7151 N. Main St. Ste. 2 Clarkston MI 48346 2489229610 ALAMYLOIDOSIS 2025 Winter Newsletter Amyloidosis Awareness Items Watch Now HereditaryAmyloidosis The Amyloidosis Channel Patient Education Activity The ABCs of Amyloidosis The Journey From Diagnosis to Treatment Read more here Featured Patient Story Patricia Devine Latest News Story Headlines Light the Night for Amyloidosis is an awareness campaign designed to raise awareness about the symptoms diagnosis treatment and potential cure January 22 2025 Calendar Upcoming Events Light the Night for Amyloidosis 2025 Light the Night for Amyloidosis is an awareness campaign designed to raise awareness about the symptoms diagnosis treatment and potential cure AHA National AL Amyloidosis PatienttoProvider Connection Forum 3rd Annual Bradley Z.
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