THE MED13L FOUNDATION INC
Supporting MED13L families through awareness, research, and community. Connecting hearts and minds to overcome challenges. #NDD #Epilepsy #Autism #ID π§¬ππ§ The MED13L Foundation is a registered 501(c)(3) nonprofit. Our ICD-10 Code is Q87.85. Update your provider today! We exist to help support MED13L families by Communicating, Connecting and Empowering!
Founded
2017
974
X (Twitter)
80
Address
BARRINGTON
The MED13L Foundation Families Supporting the MED13L Syndrome Cause. We strive to spread awareness provide family support and advance medical research in search of a cure for MED13L syndrome. MED13L Syndrome A Rare Genetic Neurodevelopmental Disorder MED13L Syndrome was first described as a neurodevelopmental disorder in 2013. It was further expanded by both Adegbola and Asadollahi as a Syndrome with global developmental delay intellectual disability ID with speech and movement delay hypotonia low tone and recognizable facial features.
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From Social media
News about THE MED13L FOUNDATION INC from their social media (Facebook and X).
- THE MED13L FOUNDATION INC
- 2025-07-08
We are happy to announce that our custom apparel and T-shirts for the 2025 MED13L Research & Family Meetup (July 9-13) will be designed by Spectrum Designs. (fb) ... more
Liked (9) Commented (1)
- THE MED13L FOUNDATION INC
- 2025-07-07
π Feeling nervous about your upcoming trip to Boston and need guidance on how to guide your child(ren) through the travel process. (fb) ... more
Liked (5) Commented (0)Discussions
OdpovΔdΓ v diskuzi
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1. What are some effective strategies for increasing awareness about rare genetic disorders like MED13L syndrome within diverse communities?
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Brooklyn Simmons
2 days ago
OdpovΔdΓ v diskuzi
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2. How can technology and social media be leveraged to create better support networks for families affected by MED13L syndrome?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
π So proud to support the MED13L Foundation and all the incredible families fighting for awareness and a cure! Together, we can make a difference! #MED13L #CommunitySupport
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π Let's raise awareness for MED13L Syndrome! Every little bit helps, and together we can empower families and advance research. Join the movement! πͺ𧬠#HopeForMED13L #NDD
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