THE MED13L FOUNDATION INC
Supporting MED13L families through awareness, research, and community. Connecting hearts and minds to overcome challenges. #NDD #Epilepsy #Autism #ID 🧬💙🧠 The MED13L Foundation is a registered 501(c)(3) nonprofit. Our ICD-10 Code is Q87.85. Update your provider today! We exist to help support MED13L families by Communicating, Connecting and Empowering!
Founded
2017
974
X (Twitter)
80
Address
BARRINGTON
The MED13L Foundation Families Supporting the MED13L Syndrome Cause. We strive to spread awareness provide family support and advance medical research in search of a cure for MED13L syndrome. MED13L Syndrome A Rare Genetic Neurodevelopmental Disorder MED13L Syndrome was first described as a neurodevelopmental disorder in 2013. It was further expanded by both Adegbola and Asadollahi as a Syndrome with global developmental delay intellectual disability ID with speech and movement delay hypotonia low tone and recognizable facial features.
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THE MED13L FOUNDATION INC
We are happy to announce that our custom apparel and T-shirts for the 2025 MED13L Research & Family Meetup (July 9-13) will be designed by Spectrum Designs. 👕 Spectrum Designs is a company made up of talented individuals with intellectual disabilities and who are within the Autism Spectrum. This work experience offers employees meaningful work while also promoting safety and emotional well-being.
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THE MED13L FOUNDATION INC
🎒 Feeling nervous about your upcoming trip to Boston and need guidance on how to guide your child(ren) through the travel process. We've got you covered. Our "Journey to Boston" social story 📖 is built to provide comfort, structure, and validation for those uncertain about the travel process.
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