THE MED13L FOUNDATION INC
The MED13L Foundation
822469441
2017
BARRINGTON, NJ 08007
med13l.org
Med13L_Fdn
med13lfoundation
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News
Despite all odds, moving to NY changed my life 🌟 I’m learning to chew like a big girl & school is helping me find new ways to communicate. I’m proud to be part of the MED13L family & can't wait to meet more kids like me. My story is just beginning! #MED13LAwarenessMonth #Rare https://t.co/iDdsbei5Vq (tw)
Addie's a 12-year-old adventurer who’s explored 20 states, loves yellow, and shines with curiosity + charm. 💛 Thanks to the Med13L Foundation, we’ve found support, community & even Able Athletics. Here’s to more family meetups & milestones! #Med13LAwarenessMonth #Rare #MED13L https://t.co/97v89PeTPZ (tw)
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About the organization
- H11 -
Families Supporting the MED13L Syndrome Cause. We strive to spread awareness provide family support and advance medical research in search of a cure for MED13L syndrome. MED13L Syndrome A Rare Genetic Neurodevelopmental Disorder MED13L Syndrome was first described as a neurodevelopmental disorder in 2013. It was further expanded by both Adegbola and Asadollahi as a Syndrome with global developmental delay intellectual disability ID with speech and movement delay hypotonia low tone and recognizable facial features.
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