🌟 The Countdown is On – 5 Months to Go! 🌟 Can you believe it? We’re just 5 months away from October 12, and our hearts are already full of hope, excitement, and gratitude. 💜 As we prepare for this special day, we’re reminded of why we come together: to support families living with MLD, and stand strong as a community that believes in miracles, love, and resilience. ✨ Mark your calendars. ✨ Share the date with your friends. ✨ Let’s make 10/12 a day full of purpose and power. Every share, prayer, and act of kindness brings us one step closer to making a lasting impact. Thank you for believing with us! 💜 #BelievingForBryleigh #CountdownTo1012 #HopeInAction #CommunityStrong #BryleighsJourney (fb)

On Tuesday evening, we joined a powerful Congressional briefing on Capitol Hill to raise our voices for babies affected by Metachromatic Leukodystrophy, also known as MLD. Our mission: to advocate for the inclusion of MLD on the RUSP—because every child deserves a chance at life without the pain and suffering that Bryleigh endured. It was a long day, but a beautiful one—filled with purpose, passion, and unwavering hope. Washington heard us, and we won’t stop until MLD is added to the newborn screening panel. #BelievingForBryleigh #MLDAwareness #NewbornScreeningSavesLives #RUSPNow #advocateforchange (fb)