NF2 Biosolutions
NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis NF2 BioSolutions, is a 100% volunteer-run, nonprofit organization that funds research for NF2
Founded
2018
5166
X (Twitter)
361
Address
West Chester
Accelerating Novel Therapies to cure NF2 - Accelerating Novel Therapy Research for Neurofibromatosis Type 2 Gene Therapy is changing the world of genetic diseases. Accelerating Novel Therapies to cure NF2 I am highly optimistic that this gene therapy strategy can represent an effective and safe therapy for patients with schwannomas whether associated with NF2 schwannomatosis or sporadic schwannomas. Message from Dr. Nicole Henwood founder and president of NF2 BioSolutions and mother of AJ diagnosed with NF2 Next Steps Our next steps include continuing to identify and sponsor leading gene cell and novel therapy labs to investigate the different therapy approaches that were discussed at our March 2019 consortium in Boston.
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NF2 Biosolutions
We are deeply saddened to share the news of the passing of Rebecca Grasso, daughter of our board member Vito Grasso, on August 23rd. Rebecca was just 34 years old. Rebecca will be remembered for her radiant smile, boundless energy, and the warmth she brought to everyone who knew her.
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NF2 Biosolutions
📢 We’re excited to announce our upcoming webinar: Peripheral Tumors in NF2 with Dr. Matthieu Peyre 🗓 October 2nd 2025 | ⏰ 2 PM ET / 7 PM BST | 💻 Zoom Register here: https://nf2biosolutions. org/nf2biosolutions-webinars/webinar-nf2-peripheral-tumors/ Peripheral tumors, such as schwannomas and neurofibromas, are common in people living with NF2 and can impact daily life in many ways.
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