International Rett Syndrome Foundation

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We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder. IRSF's vision is to create a world without Rett syndrome. Guided by families & experts worldwide, we fund trailblazing research seeking treatments and a cure, empowering support that helps families cope and offers hope, and increasing awareness of Rett.

Founded

1999

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29246

X (Twitter)

2997

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483220

Address: 4500 Cooper Road Suite 204, CincinnatiWeb: Sign in to see organisation websiteFacebook: RettSyndromeX (Twitter): RettsyndromeEmployees: 14Volunteers: 200Revenue: 4855820ICO: 311682518

Research. Family Support. Advocacy. | International Rett Syndrome Foundation Learn more about IRSF and how to stay connected. In this years edition we reflect on how far research has come with updates and stories from our community. Explore clear and reliable information to help you better understand Rett syndrome. Learn more about the promising drug treatments and gene therapies in development for Rett syndrome.

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News about from their social media (Facebook and X).

Sophia

Incredible work, IRSF! The advancements in research and the support for families are truly inspiring. Together, we can create a brighter future for those affected by Rett syndrome! 💜

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Veronica

So grateful for the resources and community you provide! It's uplifting to see so many coming together to fight for a world without Rett syndrome. Every step counts! 🌟

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George

1. What role do you believe families play in influencing Rett syndrome research and treatment initiatives, and how can we better amplify their voices in the process?

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Louise

2. How can we leverage advancements in gene therapy to increase accessibility and affordability for families affected by Rett syndrome?

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International Rett Syndrome Foundation

To the moms who rise each day with determination, meet every challenge with love, and make room for joy in the hardest moments—you are the heartbeat of our Rett community. Today, and every day, we honor you. 💜 Happy Mother’s Day.

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International Rett Syndrome Foundation

WE NEED YOUR HELP. Please contact your Members of Congress TODAY and urge them to list Rett syndrome as a topic eligible for federal research funding in the FY26 Defense Appropriations bill as part of the Congressionally Directed Medical Research Program (CDMRP). By sharing your story, you play a critical role in securing federal research funding for Rett to help develop new treatments and cures.

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Cincinnati

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