International Rett Syndrome Foundation
We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder. IRSF's vision is to create a world without Rett syndrome. Guided by families & experts worldwide, we fund trailblazing research seeking treatments and a cure, empowering support that helps families cope and offers hope, and increasing awareness of Rett.
Founded
1999
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Research. Family Support. Advocacy. | International Rett Syndrome Foundation Learn more about IRSF and how to stay connected. In this years edition we reflect on how far research has come with updates and stories from our community. Explore clear and reliable information to help you better understand Rett syndrome. Learn more about the promising drug treatments and gene therapies in development for Rett syndrome.
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DalšíFrom Social media
News about International Rett Syndrome Foundation from their social media (Facebook and X).
- International Rett Syndrome Foundation
- 2025-05-13
WE NEED YOUR HELP. Please contact your Members of Congress TODAY and urge them to list Rett syndrome as a topic eligible for federal research funding in the FY26 Defense Appropriations bill as part of the Congressionally Directed Medical Research Program (CDMRP). (fb) ... more
Liked (50) Commented (1)
- International Rett Syndrome Foundation
- 2025-05-11
To the moms who rise each day with determination, meet every challenge with love, and make room for joy in the hardest moments—you are the heartbeat of our Rett community. (fb) ... more
Liked (168) Commented (8)Discussions
Odpovědí v diskuzi
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1. What role do you believe families play in influencing Rett syndrome research and treatment initiatives, and how can we better amplify their voices in the process?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we leverage advancements in gene therapy to increase accessibility and affordability for families affected by Rett syndrome?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Incredible work, IRSF! The advancements in research and the support for families are truly inspiring. Together, we can create a brighter future for those affected by Rett syndrome! 💜
Brooklyn Simmons
Product Manager
So grateful for the resources and community you provide! It's uplifting to see so many coming together to fight for a world without Rett syndrome. Every step counts! 🌟
Brooklyn Simmons
Product Manager
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Kendall Monroe
Product Manager
Join us and make a difference for the future!
Like Wikipedia for nonprofits — but even more inspiring.
Brooklyn Simmons
Product Manager
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
Kendall Monroe
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Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Madison Carter
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Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Riley Bennett
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Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Sydney Parker
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I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Jordan Blake
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As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.
Brooklyn Simmons
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The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
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