WE NEED YOUR HELP! Please contact your Members of Congress TODAY and urge them to list Rett syndrome as a topic eligible for federal research funding in the FY26 Defense Appropriations bill as part of the Congressionally Directed Medical Research Program (CDMRP). By sharing your story, you play a critical role in securing federal research funding for Rett to help develop new treatments and cures. For FY24, Rett researchers received $3.2M in funding because of you. And, because of your efforts last summer, applications for the $150M available in the FY25 funding cycle will open in the coming weeks! With our Advocacy Tool, taking action is quick and easy! Visit rettsyndrome.org/advocacy, click "Take Action" and use your address to find your elected officials. Make sure to personalize the letter with your story, and then click send! Make your voice matter today! (fb)

To the moms who rise each day with determination, meet every challenge with love, and make room for joy in the hardest moments—you are the heartbeat of our Rett community. Today, and every day, we honor you. 💜 Happy Mother’s Day. (fb)