International Rett Syndrome Foundation
We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder. IRSF's vision is to create a world without Rett syndrome. Guided by families & experts worldwide, we fund trailblazing research seeking treatments and a cure, empowering support that helps families cope and offers hope, and increasing awareness of Rett.
Founded
1999
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Research. Family Support. Advocacy. | International Rett Syndrome Foundation Learn more about IRSF and how to stay connected. In this years edition we reflect on how far research has come with updates and stories from our community. Explore clear and reliable information to help you better understand Rett syndrome. Learn more about the promising drug treatments and gene therapies in development for Rett syndrome.
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International Rett Syndrome Foundation
WE NEED YOUR HELP. Please contact your Members of Congress TODAY and urge them to list Rett syndrome as a topic eligible for federal research funding in the FY26 Defense Appropriations bill as part of the Congressionally Directed Medical Research Program (CDMRP). By sharing your story, you play a critical role in securing federal research funding for Rett to help develop new treatments and cures.
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