APS TYPE 1 FOUNDATION

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The APS Type 1 Foundation supports education, awareness, and fundraising for critical research. The Foundation received its 501(c)(3) status in 2014.

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Stony Brook

Address: PO Box 404 12 Sand Street, Stony BrookWeb: Sign in to see organisation websiteFacebook: ApsType1FoundationRevenue: 134450ICO: 320241819

APS Type 1 Foundation | Autoimmune Polyglandular Syndrome Type 1 The APS Type 1 Foundation unites and empowers a global community to drive awareness education and groundbreaking research for APS Type 1 transforming lives affected by this rare autoimmune disorder. What is APS Type 1. Register Now for the 6th International Symposium on APS Type 1 July 2025 Join The APS Type 1 APECED Registry NEW. Please help us grow the registry with our new brochure.

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Victoria

How can we better utilize patient experiences and data from the APECED Registry to influence research directions and treatment options for APS Type 1?

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Patrick

Just registered for the 6th International Symposium on APS Type 1! Such an important event for spreading awareness and driving groundbreaking research. Let’s make a difference together! 🌍✨ #APSType1Awareness

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APS TYPE 1 FOUNDATION

August means back to school. This is the first of several posts with things to think about as we send our kids off for another great year. Kids grow and styles change, so finding a medical alert bracelet your child loves may be challenging.

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Olga

What are the most effective strategies for increasing awareness about APS Type 1 within the broader medical community and general public?

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APS TYPE 1 FOUNDATION

I know parents want to protect their children, but with school starting, they won’t always be there to be their advocate. It is very important that children start to learn to advocate for themselves. Check the link in the comments for a great article on how to start.

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Rachel

So excited to see the APS Type 1 Foundation making strides in research and education! Together, we can transform lives and bring hope to those affected by this rare disorder. 💪❤️ #TogetherWeCan

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