
Noonan Syndrome Foundation | noonan syndrome
461871620
Blue Springs, MO 64014
teamnoonan.org
NoonanSyndromeFoundation
Podobné organizace
Podobné organizace global
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ACTION FOR BPAN |
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ONTARIO RETT SYNDROME ASSOCIATION |
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Did you see the incredible story about one of our families featured by People? What a heart warming article about young Finn! We are thrilled to see Noonan syndrome shared on such a large platform and hope to continue spreading awareness and inspiration about #noonansyndrome! (fb)

Check out our new merchandise at teamnoonan.org! (fb)

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About the organization
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Resources About Us Events Shop Support NSF More. Advocating for All Affected by Noonan Syndrome Advocating Supporting and Educating Find the Information You Need Donate or Become a Sponsor Today Raising Awareness and Hope Noonan Syndrome NS affects approximately 1 in 1000 to 2500 globally making it one of the most common singlegene disorders in the world yet it remains largely unknown. At the Noonan Syndrome Foundation were working to change that. Founded by parents seeking hope and understanding for their children we are dedicated to advocating for everyone affected by NS raising awareness and fostering a supportive community that drives action.
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