NOONAN SYNDROME FOUNDATION

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Noonan Syndrome (NS) is the most common syndrome you've never heard of. Did you know that 7,000,000 people worldwide may have NS? The NS Foundation is the only non-profit org dedicated to finding effective treatments. Go Team Noonan! www.teamnoonan.org

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Blue Springs

Address: 605 US Highway 40 Ste 277, Blue SpringsWeb: Sign in to see organisation websiteFacebook: NoonanSyndromeFoundationRevenue: 38578ICO: 461871620

Noonan Syndrome Foundation | noonan syndrome Resources About Us Events Shop Support NSF More. Advocating for All Affected by Noonan Syndrome Advocating Supporting and Educating Find the Information You Need Donate or Become a Sponsor Today Raising Awareness and Hope Noonan Syndrome NS affects approximately 1 in 1000 to 2500 globally making it one of the most common singlegene disorders in the world yet it remains largely unknown. At the Noonan Syndrome Foundation were working to change that. Founded by parents seeking hope and understanding for their children we are dedicated to advocating for everyone affected by NS raising awareness and fostering a supportive community that drives action.

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Victor

1. What are some effective strategies for raising awareness about Noonan Syndrome in communities where it is largely unknown?

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Diana

🌟 So proud to support the Noonan Syndrome Foundation! Together, we can raise awareness and bring hope to families impacted by this syndrome. Let's spread the word! 💙 #TeamNoonan

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Michael

💪 Every bit of support counts! Donating to the Noonan Syndrome Foundation helps fund vital research and provides resources for those who need it most. Together, we can make a difference! 🙌 #AdvocateForNS

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NOONAN SYNDROME FOUNDATION

🌟FREE WEBINAR🌟 Don’t forget to sign up for the FREE webinar happening September 7th at 8pm EST with Dr. Eric Browning in regards to potential dental issues in Noonan syndrome patients. 🌟SIGN UP LINK: https://www.

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Margaret

2. How can we better support families dealing with the challenges of Noonan Syndrome both emotionally and practically?

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NOONAN SYNDROME FOUNDATION

➡️ Q&A: What’s included in registration. We know that registering for conference is no small task. That’s why we’ve compiled a list of exactly what to expect.

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